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Grant Abstract
Parent Education on DNA Testing in the Newborn Screen
This project will develop video based educational materials to inform new parents about implications of DNA testing for disorders evaluated in the newborn screen, using Cystic Fibrosis (CF) Newborn…- Anxiety
- behavioral /social science research tag
- Clinical Research
- Cystic Fibrosis
- data collection methodology /evaluation
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Grant Abstract
Increasing confidence and changing behaviors in primary care providers
Primary care physicians have almost no training in genetics, nor in the ethical, legal and social implications (ELSI) of genetic testing, diagnosis and therapy. Further, mere provision of curricular…- Advertisements
- Affect
- arm
- Attitude
- base
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Grant Abstract
Training Program for Psychiatric Genetics in India
Psychiatric disorders are common and significant sources of morbidity in developing as well as developed countries, yet their etiology is unknown. Like several common human diseases, certain severe…- behavioral /social science research tag
- Behavioral Genetics
- Clinical Research
- Ethics
- family genetics
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Grant Abstract
Mapping Genetic Knowledge: An Anthropological Study
This is a comparative anthropological analysis of the social networks associated with three groups of heritable connective tissue disorders: 1) Marfan syndrome, epidermolysis bullosa and…- behavioral /social science research tag
- bone development disorder
- Clinical Research
- epidermolysis bullosa
- Ethics
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Grant Abstract
The Presumptive Case against Returning Individual Results in Biobanking Research
Genomic biobank research, like much scientific and biomedical research, aims to produce generalizable knowledge of collective benefit to humans and possibly other living organisms. Direct benefit to…- Beneficence
- biobank
- Bioethics
- Biomedical Research
- Child
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Grant Abstract
Ethics, Genetics and Alzheimer Disease
This project addresses ethical and policy issues regarding current genetic susceptibility testing for late-onset Alzheimer disease (AD). It also addresses ethical aspects of ongoing autosomal… -
Grant Abstract
Data Release Policies for Genomics: Legal and Ethical Issues
A significant number of NIH-funded projects are under the jurisdiction of an explicit data release policy. Such projects include: any project with direct costs of more than $500,00 per year, any…- Communities
- confidentiality
- Confusion
- Consent
- Data
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Grant Abstract
Evaluating the Risks and Benefits of the Next Generation of Direct-to-Consumer Genetic Tests
PROJECT NARRATIVE The proposed K01 Award?'Evaluating the Risks and Benefits of the Next Generation of Direct-to-Consumer Genetic Tests??will enable the candidate to acquire the academic…- Address
- adverse outcome
- Affective
- base
- Behavioral
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Grant Abstract
Evaluating the Risks and Benefits of the Next Generation of Direct-to-Consumer Genetic Tests
PROJECT NARRATIVE The proposed K01 Award?'Evaluating the Risks and Benefits of the Next Generation of Direct-to-Consumer Genetic Tests??will enable the candidate to acquire the academic…- Address
- adverse outcome
- Affective
- base
- Behavioral
-
Grant Abstract
Returning Individual Genetic Research Results to Parents and Children
The mapping of the human genome has allowed researchers to discover new relationships between genotype and phenotype, and has provided the basis for genome-informed medical decision-making that will…- Adverse effects
- Area
- Attitude
- Autistic Disorder
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