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California State Statute (California: Cal. Business and Professions Code § 22949.50 et seq.)
Prohibits the sale of a gene therapy kit unless the seller includes a notice on the seller’s internet website to the consumer prior to the point of sale and on a label on the package stating that the…- state statute
- statute
- gene therapy
- gene therapy kit
- California
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California 2019 State Bills (California 2019 SB 180)
Prohibits a person from selling a gene therapy kit unless the seller includes a notice on the seller’s internet website that is displayed to the consumer prior to the point of sale, and on a label on…- state bill
- bill
- California
- gene therapy kit
- gene therapy
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Additional Resource
Workshop Proceedings, Exploring Novel Clinical Trial Designs for Gene-Based Therapies, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2019)
This National Academies Press publication summarizes the proceedings of workshop on ethical issues in clinical trials for gene therapies. This workshop was convened by the Forum on Regenerative…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Consensus Study Report, Gene Drives on the Horizon: Advancing Science, Navigating Uncertainty, and Aligning Research with Public Values, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2016)
This National Academies Press publication outlines the state of the science, ethics, public engagement, and risk assessment and offers principles to guide responsible practices in gene drive research.- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Consensus Study Report, Oversight and Review of Clinical Gene Transfer Protocols: Assessing the Role of the Recombinant DNA Advisory Committee, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2014)
The Institute of Medicine of the National Academies authored this 2014 assessment of the oversight function of the NIH and the NIH Recombinant DNA Advisory Committee (RAC) over human gene transfer…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Massachusetts 2015 State Bills (Massachusetts 2015 H 938)
Requires insurance coverage for magnetic resonance imaging for certain persons for the detection of breast cancer, including women who have tested positive for Breast Cancer Gene 1 or Breast Cancer…- state bill
- bill
- bill status died
- Massachusetts
- health insurance coverage
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Additional Resource
The Hastings Center Bioethics Briefings
The Hastings Center Bioethics Briefings are nonpartisan overviews of key issues in bioethics contributed by leading bioethicists. Topics include DNA and law enforcement, gene patents, and genetic…- Bioethics
- perspectives
- nonpartisan
- gene patent
- Genetic Screening
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Maine 2017 State Bills (Maine 2017 LD 1476)
As introduced, a health plan must provide coverage for risk assessment for a BRCA gene mutation and genetic counseling or testing, if necessary. Died. Bill Status: Died- state bill
- bill
- bill status died
- Maine
- health insurance coverage
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Additional Resource
New York 2019 State Bills (New York 2019 A4173)
Requires accident and health insurance policies to cover the cost of genetic testing of persons with a family history of cancer. 1/8/2020 Referred to Insurance. Bill Status: Pending- state bill
- bill
- bill status pending
- New York
- health insurance nondiscrimination
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Additional Resource
New York 2015 State Bills (New York 2015 A318)
The bill requires accident and health insurance policies to cover the cost of genetic testing for people with a family history of cancer when the attending physician determines the person has a…- state bill
- bill
- bill status died
- New York
- health insurance coverage