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Video
ELSIcon2022 Late-Breaking: Victims of Eugenic Sterilization in Utah: Demographics and Survivor Estimate
ELSIcon2022 • Networking Session • Late-breaking Abstracts • June 1, 2022 James Tabery, Nicole Novak, Lida Sarafraz, Aubrey Mansfield Eugenicists in America, at the beginning of the…- Live
- Networking Session
- Late-breaking Abstracts
- Eugenic sterilization in the 20th century
- Race, disability, and gender studies
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Video
INSIGHT @ Work: An Interdisciplinary Study on the Ethical, Legal and Social, Implications (ELSI) of Voluntary Workplace Genomic Testing (wGT)
ELSIcon2022 • Pre-recorded Flash Alyx Vogle, CGC; Betty Cohn; Rebecca Ferber; Kerry Ryan; Gregory Feero; Debra Mathews; Anya Prince; Kayte Spector-Bagdady; Kunai Sanghavi; Wendy…- Genetic Testing
- Genetic Screening
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Video
ELSIcon2022 Paper: Genetic testing for hereditary cancer risk in India: A Case Study
ELSIcon2022 • Paper • May 31, 2022 Pooja Chitre, Janis Geary, Robert Cook Deegan India has a distinct history of dynamic migration, cultural and ethnic diversity, and widespread endogamy and…- Live
- Paper
- Data and data stewardship
- Genetic testing and screening
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Video
ELSIcon2022 Paper: Fresh Air for Genetic Data Sharing
ELSIcon2022 • Paper • June 3, 2022 Mary Majumder, Christi Guerrini, Amy McGuire, Jill Robinson, Matthew Blank, Robert Cook Deegan, Juli Bollinger, Janis Gear It is now widely acknowledged…- Live
- Paper
- Data and data stewardship
- equity and justice in genetics
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Video
Sexual and Gender Minorities’ Perspectives on Genetic Privacy and Identity in Research
Catherine Hammack-Aviran, MA, JD - Vanderbilt University Medical Center ELSIconversations - March 5, 2021 Sexual orientation and gender identity minorities (SGMs) suffer significant health…- genetic privacy
- Minority Groups
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Video
When Dogs Play Cards: Interviews with Scientists, Researchers, and Oversight Committee Members on Ethical Guidelines for Human-Animal Chimera Research
Kaitlynn Craig, MA - Case Western Reserve University ELSIconversations - March 19, 2021 Advances in human stem cell science along with gene editing techniques enable scientists to more effectively…- human-chimera research
- ethical guidelines
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Video
ELSIcon2022 Late-Breaking: Impact of a direct-to-consumer (DTC) report on Alpha-1 antitrypsin deficiency (AATD) risk on clinical diagnosis of disease and on self-reported behaviors
ELSIcon2022 • Networking Session • Late-breaking Abstracts • June 2, 2022 Sarah Elson Background: Alpha-1 antitrypsin deficiency (AATD) is an autosomal co-dominant condition that predisposes…- Live
- Networking Session
- Late-breaking Abstracts
- precision medicine
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Video
ELSIcon2022: Paper Session 17
ELSIcon2022 • Paper Session 17 • June 3, 2022 Includes discussion material from Kirstin Matthews, PhD, and Shameka Poetry Thomas, PhD.- Live
- Paper
- reproductive genetics
- Gene therapy and gene editing
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Video
ELSIcon2022 Panel: Towards Justice- Race, ELSI, and Imagined Futures
ELSIcon2022 • Panel Session 17 • June 2, 2022 Melissa Creary, Kadija Ferryman ELSI has had to contend with the ways that the field has and has not adequately attended to race and racism.…- Live
- Panel
- Reflections on the ELSI field
- Gene therapy and gene editing
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Video
ELSIcon2022: Paper Session 14
ELSIcon2022 • Paper Session 14 • June 3, 2022 Includes discussion material from Kiana Amini, Vardit Ravitsky, Gail Henderson, John Conley, and Jennifer James.- Live
- Paper
- Genetic testing and screening
- Gene therapy and gene editing