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Grant Abstract
Federal Regulation of Probiotics: An Analysis of Existing Regulatory Framework and Recommendations for Alternative Frameworks
This proposal requests funding to support an evaluation of existing regulatory frameworks and their appropriateness for the regulation of new probiotic products that are available in the market or…- Benefits and Risks
- biotechnology
- Clinical
- clinical application
- Communities
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Grant Abstract
Interdisciplinary Center on Epigenetics Science and Society
One of the intended goals of the ELSI CEER program is to provide guidance on policy issues that arise from novel genetic and genomic science and applications. This focus, however, misses epigenetic…- base
- Behavior
- Cancer Diagnostics
- cancer therapy
- Cells
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Grant Abstract
Social Marketing and Cancer Genetics among Hispanics
To realize the benefits of recent advances in cancer genetics, it is critical to identify and refer families in greatest need of genetic counseling and testing services. BRCA1/2 mutations that place…- Attitude
- Behavior
- Clinical Research
- Ethnic group
- Family
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Grant Abstract
Center for Transdisciplinary ELSI Research in Translational Genomics
Harvesting the benefits of genomics requires a new kind of transdisciplinary cooperation. Over the next three years, we will create the Center for Transdisciplinary ELSI Research in Translational…- Adult
- Advisory Committees
- Affect
- Aging
- base
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Grant Abstract
Interactive multimedia consent for biobanking
Interactive Multimedia Consent for Biobanking Abstract Many biobanks in the U.S. consent thousands of contributors of biospecimens and health information. There is growing interest in the efficiency…- biobank
- Caucasians
- Cognition
- Communities
- compare effectiveness
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Grant Abstract
Genetic data partnerships: Enabling equitable access within academic/private data sharing agreements
Candidate: Kayte Spector-Bagdady, JD, MBE, is an attorney and medical ethicist focused on the governance of secondary research use of human specimens and genetic data. Her long-term career goal is to…- career
- career development
- Clinical
- clinical care
- Communities
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Grant Abstract
Human Geneticists' Practices Preferences and Beliefs about Biobanks and Large Cohort Studies
Biobanks that collect and store participants' clinical and genetic information have become important tools in genomic research, disseminating data to a large number of investigators conducting…- American
- Area
- Attitude
- Authorization documentation
- base
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Grant Abstract
Development of recommendations and policies for genetic variant reclassification
As genomic sequence data are being produced faster and at lower cost, the most significant challenge in clinical genetic testing today is variant classification. Currently, there are marked…- adverse outcome
- Advocate
- Affect
- Agreement
- Algorithms
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Grant Abstract
Reporting Adult-Onset Genomic Results to Pediatric Biobank Participants and Parents
The potential benefits and harms of returning genomic results to children and their parents are matters of enduring controversy--especially genomic results for adult-onset conditions that are not…- Adolescent
- Adolescent Development
- Adult
- Affect
- Anxiety
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Grant Abstract
Research Participant Protections in Rural America
This qualitative study is designed to examine the ethical conduct of clinical research, including the conduct of clinical trials, in rural healthcare settings. This study is of great significance…- Academic Medical Centers
- Address
- Adherence
- Administrator
- American Heart Association