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Video
Investigating an Ethos of Duty in Precision Medicine Research Calls for Minority Participation
ELSIcon2022 • Pre-recorded Paper Rachel Bailey, ABD - University of Georgia, Graduate Student Teaching Assistant: Investigating an Ethos of Duty in Precision Medicine Research Calls…- Education
- public reception of genetic science
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Video
ELSIcon2022 Paper: Public Engagement in Governance of Human Genome Editing in the Post-He Jiankui Era
ELSIcon2022 • Paper • June 3, 2022 John Conley, Eric Juengst, Rebecca Walker, Jean Cadigan, Gail Henderson When scientists meeting at Asilomar in 1975 wrote guidelines for recombinant DNA…- Live
- Paper
- Gene therapy and gene editing
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Video
The All of Us Responsible Conduct of Research Training: Fostering Ethical and Socially Responsible Research with Data from All of Us Participants
ELSIcon2022 • Pre-recorded Panel Sonya Jooma - All of Us Research Program, National Institutes of Health, Deputy Policy Director Katherine Blizinsky, PhD - All of Us Research Program, National…- precision medicine
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Video
CRISPR and Human Identity: Governing Germline Gene Editing
International uproar followed the announcement in late 2018 of the birth of twin girls whose genomes had been edited with CRISPR genome editing technology. Critics pointed not only to the health…- CRISPR
- Personal Identity
- Gene Editing
- Governance of emerging genomic technologies
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Video
ELSIcon2022 Flash: Latina women’s knowledge of, preferences for, and experiences with prenatal genetic testing: A scoping review
ELSIcon2022 • Flash • May 27, 2022 Natalie Grafft, Maria Pineros Leano, Andrew Dwyer Background: The American College of Obstetricians and Gynecologists recommends prenatal genetic testing (PGT) be…- Uptake of genetic testing
- Genetic testing and screening
- Flash
- Pre-Recorded
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Video
ELSIcon2022 Panel: Towards Justice- Race, ELSI, and Imagined Futures
ELSIcon2022 • Panel Session 17 • June 2, 2022 Melissa Creary, Kadija Ferryman ELSI has had to contend with the ways that the field has and has not adequately attended to race and racism.…- Live
- Panel
- Reflections on the ELSI field
- Gene therapy and gene editing
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Video
Widening the Lens: Using Arts in ELSI Research
Using the arts in ELSI research can offer new insights and opportunities to engage with diverse participants in genomic research. ELSI scholars have creatively incorporated…- arts-based methods
- ELSI research
- ART
- Community Engagement
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Video
ELSIcon2022 Paper: Willingness towards re-use of donated biosamples for stroke genomic research among West African stroke patients and stroke-free individuals
ELSIcon2022 • Paper • May 27, 2022 Olorunyomi Olorunsogbon, Muyiwa Adigun, Babatunde R. Ojebuyi, Joshua Akinyemi, Kolawole Wahab, Albert Alpalu, Fred S. Sarfo, Lukman F. Owolabi, Rabiu Musbahu,…- Attitudes about sharing biological samples and health data
- global health
- Paper
- Pre-Recorded
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Video
What does ‘respect for persons’ really mean? Practical considerations for demonstrating respect in genomics research
Stephanie Kraft, JD - University of Washington ELSIconversations - March 5, 2021 Demonstrating respect for research participants is not only an ethical imperative but, if done effectively, it may…- Community Engagement
- Research Recruitment