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Publication
How should communities be meaningfully engaged (if at all) when setting priorities for biomedical research? Perspectives from the biomedical research community
BMC Medical EthicsBorthwick, Evertsz, and Pratt find support for community engagement in biomedical research priority-setting, but no consensus on what ethical purpose it should serve or how it should be done. -
News
Will the benefits of genomics research reach “All of Us”?
One approach to identifying new potential drug targets, Dr. Keolu Fox, a human geneticist in the Indigenous Futures Lab at the University of California, San Diego claims, is adding genetic… -
Publication
Extending the CARE Principles from tribal research policies to benefit sharing in genomic research
Frontiers in GeneticsCarroll and colleagues analyze the content of research governance documents from 26 U.S. tribal communities and recommend the addition of explicit requirements for benefit sharing. -
Grant Abstract
Programs for the Training and Advancement of the Next GENeration of Native Researchers in Genetics, Ethics and Society
The lack of American Indian and Alaska Native professionals in genomic sciences today highlights the tremendous need for effective training and research programs to prepare the next generation of…- academic program
- Achievement
- Address
- Affect
- Alaska Native
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Publication
Politics, culture, and governance in the development of prior informed consent in indigenous communities
Current AnthropologyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
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Publication
Grand challenges in global health: Community engagement in research in developing countries
Plos Medicine