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Publication
Documentation of inherited disorders and mutation frequencies in the different religious communities in Israel in the Israeli National Genetic Database
Human MutationDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Attitudes towards genetic screening for predisposition to colon cancer among cancer patients, their relatives and members of the community
Community GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Agenda-Setting in the Human Genome Initiative
This study will undertake a sociological study of the impact of the genome initiative on the social organization and dynamics of the biological research community, including questions of… -
Publication
From community-based carrier programs to opportunistic carrier screening: How the objective of carrier screening was lost in translation
The American Journal of Bioethics -
Grant Abstract
National Black Leadership Conference on Genetics
The National Black Leadership Conference on Genetics will bring together thought, civic, and elected leaders from the black community to learn about human genetics, new developments in genetic…- African American
- meeting /conference /symposium
- Molecular Genetics
- Population Genetics
- Travel
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Grant Abstract
Making Every Voice Count: Public Consultation on Genetics, Environment and Health
The completion of the human genome project, the creation of unique genetic research resources, and the development of robust genome analysis technology, have provided powerful tools to unravel the…- Attitude
- Clinical Research
- community
- Genetics
- Health
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Video
ELSIcon2022 Paper: Community Perspectives on Electronic Consent Education for the Retention of Newborn Screening Bloodspots
ELSIcon2022 • Paper • May 27, 2022 Erin Rothwell, Caren Frost, Bob Wong, Erin Johnson Promoting informed decision making for research while concurrently advancing equity and justice for underserved…- Attitudes about sharing biological samples and health data
- Biobanking and genomic databases
- Paper
- Pre-Recorded
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Publication
Genes do not operate in a vacuum, and neither should our research
Nature GeneticsMartschenko and Smith call for the genetics community to bring diverse voices into the research process and create a more socially responsible research enterprise.