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Publication
Perspectives on precision health among racial/ethnic minority communities and the physicians that serve them
Ethnicity & Disease -
Grant Abstract
The Human Genome Project: Reaching the Minority Communities of Maryland
This two-day conference will provide information about the Human Genome Project (HGP), and specifically the ethical, legal, and social implications (ELSI) of the HGP, to members of minority… -
News
Novel Gene Therapies for Pediatric and Young Adults with Sickle Cell Disease: Engaging Patient and Parent Stakeholders Working Group
Sickle Cell Disease (SCD) is an inherited disorder that results in premature mortality and severe morbidity in millions of afflicted individuals worldwide. Novel therapies are urgently needed and…- working group
- gene therapy
- Sickle Cell
- Stakeholder Engagement
- Spotlight
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Video
Visual Storytelling in ELSI Research
The ELSI Friday Forum was held on Friday, April 14, 2023. “A picture is worth a thousand words” - this widely understood sentiment could play a vital role in ELSI research and communication about…- Visual storytelling
- Community Engagement
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Publication
Adapting a conceptual framework to engage diverse stakeholders in genomic/precision medicine research
Health Expectations -
Grant Abstract
Utility of Genomic Sequencing in Community Care Contexts
PROJECT NARRATIVE Families with children who have identified deficits in speech and/or sensory or musculoskeletal impairments without a known cause may be referred for genetic testing to find out…- Address
- Advisory Committees
- Area
- base
- Behavior
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Publication
Hearing community voices: Public engagement in Australian human embryo research policy, 2005-2007
New Genetics and SocietyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
At a moment's notice: Community Advisory Board perspectives on biobank communication to supplement broad consent
Public Health Genomics