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Publication
Experiences with community engagement and informed consent in a genetic cohort study of severe childhood diseases in Kenya
BMC medical ethicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
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Publication
Engagement and communication among participants in the ClinSeq Genomic Sequencing Study
Genetics in Medicine -
Publication
The decision phases framework for public engagement: Engaging stakeholders about gene editing in the wild
Hastings Center Report -
Publication
Perspectives of rare disease social media group participants on engaging with genetic counselors: Mixed methods study
Journal of Medical Internet Research -
Publication
Perceptions and beliefs of community gatekeepers about genomic risk information in African cleft research
BMC Public Health -
Grant Abstract
Human Genome Project: Community Conversations
This 3-Year Project (Amended Application) seeks support for an innovative inter-regional public education model, in New York and Arizona, aimed at developing and using public libraries as centers for…- biotechnology
- Clinical Research
- education evaluation /planning
- Ethics
- Genetic Screening
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Publication
Medical mistrust influences black women's level of engagement in BRCA 1/2 genetic counseling and testing
J Natl Med Assoc -
Additional Resource
Workshop Proceedings, Public Engagement and Clinical Trials: New Models and Disruptive Technologies, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2012)
This National Academies Press publication summarizes the proceedings of a workshop that explored solutions to increase public engagement in the U.S. clinical trials enterprise. The workshop was…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
Engagement and communication among participants in the ClinSeq Genomic Sequencing Study
Genet MedClinical Sequencing Evidence-Generating Research (CSER) Consortium.