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Grant Abstract
Disability, diversity and trust in precision medicine research: stakeholders engagement
Project Narrative Studies suggest that distrust is a major barrier for participation of minorities in Precision Medicine Research (PMR), though no study has examined the sources of (dis)trust and…- Adult
- Affect
- African American
- Alaska Native
- American Indians
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Grant Abstract
Engaging Tribal Participation in Research through Priority Setting and Regulation
The recruitment of American Indians and Alaska Natives (AI/AN) to participate in research is complicated by a long and troubled history between researchers and Native populations of the United States…- Alaska
- Alcohols
- American Indian and Alaska Native
- American Indians
- Area
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Grant Abstract
Faith Forum on Genetics: An ELSI Educational Intervention for Religious Communities
This community education intervention is a collaborative initiative between Pacific University, the Pacific Institute for Ethics and Social Policy, and Ecumenical Ministries of Oregon. it is a pilot…- behavioral /social science research tag
- Clinical Research
- education evaluation /planning
- educational resource design /development
- Ethics
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Grant Abstract
Increasing AIAN Research Engagement through a Culturally Adapted Ethics Training
American Indian and Alaska Natives (AIAN) face glaring health disparities, and AIAN-specific research lags behind other racial and ethnic data in addressing AIAN health concerns. Engaging AIAN…- Accidental Injury
- Address
- Affect
- Alaska Native
- Alcoholism
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Additional Resource
Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe)
Ellen W. Clayton and Bradley Malin are Co-Directors of the Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe), an NIH Center of Excellence in Ethics Research at Vanderbilt…- CEER
- genetic privacy
- genetic identity
- genomic data re-identification
- Policy
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Grant Abstract
Engaging' Tuscans in Italy in the Haplotype Map Project (HAPMAP)
The impetus for this proposal began with the decisions to include a Southern European population sample in the new Haplotype Map Project (HapMap Project) and to undertake this research among…- Attitude
- behavioral /social science research tag
- biotechnology
- Blood Tests
- Clinical Research
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Publication
Community-based dialogue: Engaging communities of color in the United States' genetics policy conversation
Journal of Health Politics, Policy and LawDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Additional Resource
University of Michigan Center for Public Health and Community Genomics
The Center for Public Health and Community Genomics, directed by Toby Citrin, J.D. and co-directed by Sharon Kardia, Ph.D., promotes the integration of genomic discoveries into public health practice…- Toby Citrin
- University of Michigan
- Sharon Kardia
- Public Health
- Health Disparities
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Publication
Re-envisioning community genetics: Community empowerment in preventive genomics
Journal of Community Genetics