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Grant Abstract
An Experimental Study to Improve Risk/Benefit Appraisal
The specific aims of this research are to develop, implement, and assess the effectiveness of a decision balance risk-benefit component as part of the informed consent process for women deciding to…- African American
- behavioral /social science research tag
- blood disorder diagnosis
- caucasian American
- Decision Making
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Grant Abstract
Self-governance in the Human Genome Editing Era: Can Science Rise to the Challenge?
PROJECT NARRATIVE Human genome editing technologies are evolving rapidly and with this evolution brings questions regarding governance and the ethical implications involved in applying these…- Area
- base
- Basic Science
- Biological Sciences
- Case Study
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Grant Abstract
Labor Conference on the Workplace and the Human Genome
This conference will bring together experts in science, ethics, and law, with experts in knowing and representing the needs of American Workers. The conference will build a base of knowledge among…- Ethics
- Genome
- Health behavior
- health insurance
- health science research
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Grant Abstract
Short Course in Ethics and Genomic Analysis
Two short courses are being offered to doctoral, post-doctoral, and professional persons in the fields of ethics and genetics. The purpose is first to familiarize the ethicists with the fundamentals… -
Grant Abstract
Prescriptive Decision Modeling for Cystic Fibrosis Screening
Dr. Asch will be conducting a prescriptive decision analysis for CF screening programs, which will use decision theory and economic techniques to model decision-making about CF carrier testing. The…- Cystic Fibrosis
- Decision Making
- gene mutation
- Genetic Counseling
- health care cost /financing
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Grant Abstract
Return of Research Results from samples obtained for Newborn Screening
In order to maximize the potential benefit of research using newborn screening residual dried blood samples (DBS), a paradigm shift will be necessary to develop an infrastructure in which parental…- biobank
- Biochemical
- Bioethics
- Blood specimen
- clinical care
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Grant Abstract
New Frameworks for Informed Consent in Genomic and Precision Medicine
The emergence of genomic medicine has not been without unique concerns that continue to challenge clinicians working in this arena. Genomic test results have implications for individuals other than…- base
- Benefits and Risks
- Big Data
- biotechnology
- Books
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Grant Abstract
Families and Carrier Testing for Hemophilia A
The purpose of this project is to enhance understanding of how individuals respond to carrier detection in genetic diseases that have an X-linked mode of inheritance. The project will study how… -
Grant Abstract
Dissemination of a BRCA1 Predisposition Testing Program (II)
This is a multi-site randomized study comparing standard genetic counseling (GC) to an enhanced consent-based (EC) model. The investigators will compare the effects of the two interventions on… -
Grant Abstract
Behavioral and Psychosocial Effects of BRCA1 Testing
This research project will offer genetic testing to approximately 400 adult men and women who belong to a large kindred which has been found to have markers on chromosome 17q that are tightly linked…