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Grant Abstract
Toward a Framework for Policy Analysis of Microbiome Research
It is recognized that research on the human microbiome is important for its potential scientific and medical impact. The complexity of microbiome research, however, could change the way that genetics…- Benefits and Risks
- Bioethics
- Biomedical Research
- Categories
- Clinical Trials
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Grant Abstract
Microbiome-Based Diagnostics: Stakeholder Perceptions and Implications for the Regulatory Framework
The state of knowledge regarding the human microbiome is advancing rapidly and a burgeoning new area of research and development is microbiome-based diagnostics. There is much that is not yet known…- Award
- Baltimore
- base
- Benefits and Risks
- Bioethics Consultants
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Grant Abstract
History of Prenatal Diagnosis
This project involves the research and writing of a history of modern prenatal diagnosis. Recent scholarly work in the history of science, technology, and medicine will provide the conceptual… -
Grant Abstract
The Effect of Electronic Informed Consent Information (EICI) on Residual Newborn Specimen Research
Obtaining adequate informed consent from potential research participants is a significant challenge for biobank-dependent research. To maintain public trust and support, it is important to establish…- Attitude
- Authorization documentation
- Award
- base
- biobank
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Grant Abstract
Health Care Provider Responses to Receiving Unsolicited Genomic Results
PROJECT NARRATIVE Little is known about how health care providers (HCPs) will react to, and use, genomic information in patient care. The goal of this study is to understand how genomic information…- Address
- barrier to care
- base
- Behavior
- biobank
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Grant Abstract
Prophylactic Mastectomy: The Patient Experience
Prophylactic mastectomy (PM) has been shown to reduce the risk of breast cancer 90% in women at high and moderate risk, but its use is limited by low acceptability. Researchers caution that this is a…- age difference
- behavioral /social science research tag
- Body Image
- breast neoplasms
- breast surgery
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Grant Abstract
Interdisciplinary Center on Epigenetics Science and Society
One of the intended goals of the ELSI CEER program is to provide guidance on policy issues that arise from novel genetic and genomic science and applications. This focus, however, misses epigenetic…- base
- Behavior
- Cancer Diagnostics
- cancer therapy
- Cells
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Grant Abstract
Sharing Qualitative Research Data: Identifying and Addressing Ethical and Practical Barriers
This project will identify and address ethical and practical barriers to qualitative data sharing (QDS) in health sciences research. Qualitative research has unique value in understanding health…- Algorithms
- Attitude
- base
- Bioinformatics
- Case Study
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Grant Abstract
Risk-Benefit Trade-Offs for Whole Genome Sequencing
New technologies are enabling the arrival of the much awaited affordable genome the ability to sequence an individuals or a tumors entire genome quickly and inexpensively [whole genome sequencing (…- Benefits and Risks
- Clinical
- clinical care
- clinical practice
- Clinical Trials
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Grant Abstract
Precision Genomics in the WISDOM Pragmatic Clinical Trial: An Embedded ELSI Study of Risk-based Breast Cancer Screening
Using emerging genomic information to create opportunities for targeted or risk-based screening in cancer prevention and control is a critical component of President Obama's Precision Medicine…- Administrator
- Adoption
- Advocate
- African American
- Anxiety