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Video
ELSIcon2022 Paper: The definition and handling of genomic data in a digitalized society: A Japanese perspective
ELSIcon2022 • Paper • May 27, 2022 Jusaku Minari The development of genomic research increasingly contributes to the understanding, diagnosis, and treatment of various diseases, including…- Education and public reception of genetic science
- Paper
- Pre-Recorded
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Video
ELSIcon2022: Paper Session 13
ELSIcon2022 • Paper Session 13 • June 3, 2022 Includes discussion material from Kayte Spector-Bagdady, Arti Singh, Roselle Ponsaran, and Mary Majumder.- Live
- Paper
- equity and justice in genetics
- Education and public reception of genetic science
- Biobanking and genomic databases
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Video
April 2024 ELSI Friday Forum: Why Film and TV? ELSI Research and the Public Imagination
The study of genetics has long been viewed through the lens of mass media and entertainment, and as the field has progressed in recent decades, its portrayal in media, television, and film has also…- ELSI
- Humanities
- genetics and media
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Video
ELSIcon2022 Paper: Why Do Patients Drop Out of Population-Based Screening for Hereditary Cancer Risk?
ELSIcon2022 • Paper • June 1, 2022 Catharine Wang, Kevin C. Cain, Elizabeth Swisher, Deborah J.Bowen, Susan Trinidad Identifying patients who have increased genetic risk for common…- Live
- Paper
- Uptake of genetic testing
- Genetic testing and screening
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Video
ELSIcon2022 Panel: Privacy, Agency, and Relationships in the Genomic Era: Views from the Public
ELSIcon2022 • Panel • May 27, 2022 Ellen Clayton, Sarah Hagaman, Ayden Eilmus, Zhijun Yin This panel highlights the transdisciplinary approach our Center for Genetic Privacy and Identity in…- genetic identity
- Genetic testing and screening
- Panel
- Pre-Recorded
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Video
Innovating Equitable Communication Modalities for Patient Activation and Cascade Testing for Familial Hypercholesterolemia: Cases of Ethical, Legal, and Social Complexities from a Pragmatic Trial
ELSIcon2022 • Pre-recorded Panel Gemme Campbell-Salome - Geisinger Amy Sturm Kelly Morgan Eric Tricou, MS, CGC - Geisinger, Genetic Counselor Innovating Equitable Communication Modalities for…- Genetic Testing
- Genetic Screening
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INSIGHT @ Work: An Interdisciplinary Study on the Ethical, Legal and Social, Implications (ELSI) of Voluntary Workplace Genomic Testing (wGT)
ELSIcon2022 • Pre-recorded Flash Alyx Vogle, CGC; Betty Cohn; Rebecca Ferber; Kerry Ryan; Gregory Feero; Debra Mathews; Anya Prince; Kayte Spector-Bagdady; Kunai Sanghavi; Wendy…- Genetic Testing
- Genetic Screening
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ELSIcon2022 Panel: Development of a Consortium on Best Practices Related to Genomics and Adoption
ELSIcon2022 • Panel Session 6 • June 1, 2022 Kelly East, Thomas May, Marsha Michie, Crystal Smith The 'Genomics & Adoption Symposium'; a consensus project on best practices and appropriate…- Live
- Panel
- Relative finding/matching
- Genetic testing and screening
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Video
ELSIcon2022 Panel: The Ethics of Influence and Choice Architecture in Genomics: Where Have We Been and Where Are We Going?
ELSIcon2022 • Panel • June 3, 2022 Benjamin Berkman, Susanna McGrew, Leila Jamal In Western bioethics, patient choice and autonomy have historically carried the most weight in conversations…- Live
- Panel
- Uptake of genetic testing
- Genetic Counseling
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Video
ELSIcon2022 Paper: Cancer's Margins: Exploring Trans* Experiences of Hereditary Cancer Risk
ELSIcon2022 • Paper • May 31, 2022 Sarah Roth Individuals with diverse gender identities are being newly recognized as a significant proportion of the population seeking genetic counseling in…- Live
- Paper
- Genetic Counseling