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Video
ELSIcon2022: Paper Session 10
ELSIcon2022 • Paper Session 10 • June 2, 2022 Includes discussion material from Ruth Farrell, Catharine Wang, Kristina Suorsa-Johnson, Susan Markens, and Christina Collart.- Live
- Paper
- Genetic testing and screening
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Video
ELSIcon2022: Flash Session 2
ELSIcon2022 • Flash Session 2 • June 3, 2022 Includes discussion material from Amy Blumling, Caroline Horrow, Shawn T. Sorge, Eric Anderson, and EJ Dusic.- Live
- Flash
- Genetic testing and screening
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Video
ELSIcon2022: Paper Session 15
ELSIcon2022 • Paper Session 15 • June 3, 2022 Includes discussion material from Drew Blasco, Madison Kilbride, Katrina Romagnoli, and Blake Vuocolo.- Live
- Paper
- Genetic testing and screening
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Video
ELSIcon2022 Paper: Patients’ and Parents’ Perceived Utility of Genomic Sequencing: Instrument Development and Validation
ELSIcon2022 • Paper • May 31, 2022 Caryn Rubanovich, Jill Robinson, Sarah Classen, Janet Malek, Kyle B. Brothers, Benjamin Wilfond, Barbara Koenig, Carol Horowitz, Christine Rini, Barbara…- Live
- Paper
- tools
- Genetic testing and screening
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Video
ELSIcon2022 Paper: Reproductive Concerns of Disabled Women: Whose Definitions of Disability are We Embracing?
ELSIcon2022 • Paper • June 3, 2022 Presented by: Dana Ernst • Co-Authors: Laren Clark, Sara Simonsen, Jacqueline Kent-Marvick, Elinor Ochs • Special thanks: James Tabery, Rebecca Anderson…- Live
- Paper
- Language and categorization
- reproductive genetics
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Video
Racial and Ethnic Classification in the Clinic: Is it Just?
Natalie Pino, BA - National Human Genome Research Institute ELSIconversations - March 26, 2021 The United States has a long history of institutionally classifying people by racial and ethnic (R/E)…- racial /ethnic difference
- race and genetics
- clinical challenges
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Video
ELSIcon2022 Flash: Revisiting the ethics of secondary findings in diagnostic genome-wide sequencing
ELSIcon2022 • Flash • May 27, 2022 Michael Mackley Secondary findings (SF) in genome-wide sequencing are variants unrelated to the indication for testing but associated with medically actionable…- return of results
- Genetic testing and screening
- Flash
- Pre-Recorded
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Video
ELSIcon2022 Panel: What Can Intersectionality Bring to ELSI?: Transforming Theory into Practice
ELSIcon2022 • Panel Session 8 • June 1, 2022 Daphne Martschenko, Lucas Matthews, Maya Sabatello, Krystal Tsosie In theory, the study of Ethical, Legal, and Social Implications (ELSI) of…- Live
- Panel
- Reflections on the ELSI field
- equity and justice in genetics
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Video
ELSIcon2022 Panel: Sharing Data: Speedbumps on the Translational Trail
ELSIcon2022 • Panel 10 • June 1, 2022 Kathryn Maxson Jones, Vasiliki Rahimzadeh, Kayte Spector-Bagdady, Robert Cook-Deegan This panel features three talks by women researchers empirically…- Live
- Panel
- Data and data stewardship
- equity and justice in genetics
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Video
ELSIcon2022: Paper Session 17
ELSIcon2022 • Paper Session 17 • June 3, 2022 Includes discussion material from Kirstin Matthews, PhD, and Shameka Poetry Thomas, PhD.- Live
- Paper
- reproductive genetics
- Gene therapy and gene editing