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Video
ELSIcon2022 Paper: Shining a light on overlooked questions in ELSI genomics
ELSIcon2022 • Paper • May 27, 2022 Ainsley Newson The rapid mainstreaming of clinical genomics and an ever-expanding global genomics research agenda have given rise to a large body of scholarship…- Reflections on the ELSI field
- Genetic testing and screening
- Paper
- Pre-Recorded
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Video
ELSIcon2022 Flash: Inequality and Health: Sickle Cell Disease and Food Insecurity during the COVID-19 Pandemic
ELSIcon2022 • Flash • May 27, 2022 Faeben Wossenseged, Ashley Buscetta, Nicole Farmer, Vence Bonham The COVID-19 pandemic has exacerbated social inequalities including food insecurity, limiting…- Lived experience of genetic conditions
- health disparities
- Flash
- Pre-Recorded
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Video
ELSIcon2022 Paper: Examining Embeddedness: A Call for Principles and Best Practices for Integrating ELSI
ELSIcon2022 • Paper • May 27, 2022 Jenny Reardon, Stephanie M. Fullerton, and Sandra Soo-Jin Lee Increasingly, public and private funders have come to recognize the critical significance of…- Reflections on the ELSI field
- equity and justice in genetics
- Paper
- Pre-Recorded
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Video
ELSIcon2022: Paper Session 14
ELSIcon2022 • Paper Session 14 • June 3, 2022 Includes discussion material from Kiana Amini, Vardit Ravitsky, Gail Henderson, John Conley, and Jennifer James.- Live
- Paper
- Genetic testing and screening
- Gene therapy and gene editing
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Video
Platform Heals? Ethical Issues in Direct-to-consumer Telepharmacies
Ben Wills - The Hastings Center ELSIconversations - February 26, 2021 Healthcare is in the middle of a dramatic revolution. Hims, Hers, Roman, Nurx, LemonAid, and The Pill Club are start-ups…- direct to consumer marketing
- Direct to Consumer Genetic Testing
- telemedicine
- Healthcare
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Video
ELSIcon2022 Paper: Child and adolescent psychiatrists’ knowledge, attitudes, and experiences with polygenic risk scores
ELSIcon2022 • Paper • June 1, 2022 Stacey Pereira, Katrina Muñoz, Takahiro Soda, Brent Small, Laura Torgerson, Clarissa Sanchez, Jehannine Austin, Eric Storch, Gabriel Lázaro-Muñoz Progress in…- Live
- Paper
- Screening for polygenic conditions and risk scores
- Genetic testing and screening
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Video
ELSIcon2022 Paper: Cystic Fibrosis Communities: Shifting Sites of Prognostic Imagination
ELSIcon2022 • Paper • May 27, 2022 Rebecca Mueller Long before COVID-19 made social distancing normal, people with cystic fibrosis already practiced such behaviors. Between the 1980s and the…- Lived experience of genetic conditions
- Race, disability, and gender studies
- Paper
- Pre-Recorded
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Video
ELSIcon2022: Flash Session 1
ELSIcon2022 • Flash Session 1 • May 31, 2022 Includes discussion material from Julie Beans, Cheng Chen, Stella Murphy, Nina Vo, Breana Rinker, Bridget Easler, and Sheethal Jose.- Live
- Flash
- Race, disability, and gender studies
- precision medicine
- reproductive genetics
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Video
ELSIcon2022 Panel: Engagement with Historically Marginalized Communities: Methods, Positionality and ELSI in Precision Medicine Research
ELSIcon2022 • Panel Session 12 • June 2, 2022 Kyle B. Brothers, Nanibaa' A. Garrison, Maya Sabatello, Amy Lemke The practice of community engaged research is grounded in ethical, practical,…- Live
- Panel
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Video
ELSIcon2022 Panel: Out of the tower and onto the ground: engaging communities and scientists in emergent research priorities
ELSIcon2022 • Panel • May 27, 2022 Sara Ackerman, Julia Brown, Keolu Fox, Sandra Soo-Jin Lee ELSI scholars work under varied institutional support structures that make it difficult to…- Recruiting diverse participants to precision medicine research
- genomics research
- biobank
- equity and justice in genetics
- Panel