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Video
The All of Us Responsible Conduct of Research Training: Fostering Ethical and Socially Responsible Research with Data from All of Us Participants
ELSIcon2022 • Pre-recorded Panel Sonya Jooma - All of Us Research Program, National Institutes of Health, Deputy Policy Director Katherine Blizinsky, PhD - All of Us Research Program, National…- precision medicine
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Video
Law Enforcement and Genetic Data: A Discussion for Journalists
Law Enforcement and Genetic Data: A Discussion for Journalists • October 26, 2021 This is the second in a series "Genomics in Society: New Developments, New Questions: Discussions with…- Law Enforcement
- Genetic Data Sharing and Management
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Video
ELSIcon2022 Late-Breaking: Laypeople overestimate the predictive power of polygenic scores but do not view them as any more anxiety-producing than other scores for the same trait
ELSIcon2022 • Networking Session • Late-breaking Abstracts • May 31, 2022 Michelle Meyer Several companies return polygenic scores (PGSs) for medical and nonmedical traits. There is no…- Live
- Networking Session
- Late-breaking Abstracts
- Screening for polygenic conditions and risk scores
- Return of results and incidental findings
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Video
ELSIcon2022 Paper: Public Engagement in Governance of Human Genome Editing in the Post-He Jiankui Era
ELSIcon2022 • Paper • June 3, 2022 John Conley, Eric Juengst, Rebecca Walker, Jean Cadigan, Gail Henderson When scientists meeting at Asilomar in 1975 wrote guidelines for recombinant DNA…- Live
- Paper
- Gene therapy and gene editing
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Video
Genomics, Human Behavior, and Social Outcomes
Genomics, Human Behavior, and Social Outcomes • October 12, 2021 This is the first in a series "Genomics in Society: New Developments, New Questions: Discussions with Journalists" hosted by…- ELSI
- Journalism
- Sociogenomics
- Behavioral Genetics
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Video
Genetics and AI: Group Privacy and Fairness
Big data and artificial intelligence are growing more pervasive and are creating new, complex links between individuals and the many groups to which they might belong, including groups no one might…- Big Data
- AI
- genomic privacy
- Algorithms
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Video
Defining the Critical Components of Informed Consent for Genetic Testing
Kelly Ormond, MS, CGC - Stanford University ELSIconversations - March 26, 2021 The Consent And Disclosure Recommendations (CADRe) workgroup within ClinGen (Clinicalgenome.org) consortia has been…- Genetic Testing
- Informed Consent
- clinical genetics
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Video
Genetic Advantages in Sports: When Do They Count as "Doping"?
What is the essence of sports, and how does that impact the way doping is defined? The sports world is already preparing for an inevitable wave of "gene-doping" as gene-transfer technologies advance…- Doping In Sports
- Sports
- Genetic Enhancement
- genetic therapy
- Gene Transfer
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Video
Current Legal Challenges to Abortion: Implications for Prenatal Genetics
ELSI Friday Forum • July 9, 2021 Multiple US states have passed laws limiting the ability to terminate a pregnancy affected by Down syndrome or other genetic conditions, with the Ohio version of…- Prenatal Counseling
- prenatal genetic testing
- Legal Aspects
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Video
Shedding Light on the Use of Population Descriptors in Clinical Genetics
Alice Popejoy, PhD ADWG ELSIconversations Session 1 - April 29, 2022 Question: How is information about patient race, ethnicity, and ancestry on clinical laboratory requisition forms used in…- population descriptors
- clinical genetics