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Video
ELSIcon2022 Paper: Genetic data and the collective good: participants as leaders to reconcile individual and public interest
ELSIcon2022 • Paper • June 2, 2022 Ilaria Galasso, Susi Geiger This paper problematizes the notion of collective good in the contest of medical research and juxtaposes consequentialist and…- Live
- Paper
- Data and data stewardship
- equity and justice in genetics
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Video
ELSIcon2022 Paper: Consumers’ Perspectives Following Direct-to-Consumer Genetic Testing for Cancer Risk
ELSIcon2022 • Paper • June 3, 2022 Madison Kilbride, Brigitte Cronier, Lisa Kessler, Angela Bradbury Once limited to the clinical setting, genetic testing for cancer susceptibility is now widely…- Live
- Paper
- Genetic testing and screening
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Video
ELSIcon2022 Paper: Race-Based Genetic Testing: Learning from Black Americans to Inform Policy and Practice
ELSIcon2022 • Paper • May 27, 2022 James DuBois, Ana Iltis Geographical ancestry has been associated with increased risk of various genetic conditions. Race and ethnicity often have been used as…- Uptake of genetic testing
- Genetic testing and screening
- Paper
- Pre-Recorded
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ELSIcon2022 Flash: Socioeconomic Status and Interest in Pursuing Genetic Testing for Hereditary Cancer in a US Based Population
ELSIcon2022 • Flash • June 3, 2022 Presented by: EJ Dusic Deborah J. Bowen, Robin Bennett, Tesia Theoryn, Kevin C. Cain, Elizabeth Swisher, Jeannine Brant, Brian Shirts, Catharine Wang…- Live
- Flash
- Uptake of genetic testing
- Genetic testing and screening
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Video
ELSIcon2022 Plenary: Ableism, Audism, Ethics, and Genetics: A Just and Equitable Deaf Future?
ELSIcon2022 • Plenary Session • June 1, 2022 Welcome and Introduction by Mildred Cho, PhD Teresa Blankmeyer-Burke, PhD: Ableism, Audism, Ethics, and Genetics: A Just and Equitable Deaf Future?…- Live
- Plenary Session
- Stigma and discrimination
- ableism
- audism
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Video
ELSIcon2022 Paper: Provider Practices in Referring for Germline Genetic Testing for Men with Prostate Cancer at a Safety-Net Hospital
ELSIcon2022 • Paper • June 2, 2022 Christine Gunn, Emma Li, Gretchen Gignac, Magdalena Pankowska, Stephanie Loo, Kim Zayhowski, Catharine Wang National Comprehensive Cancer Network Guidelines…- Live
- Paper
- Uptake of genetic testing
- Genetic testing and screening
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Video
ELSIcon2022 Panel: Developing an Evidence Base for Investigative Genetic Genealogy (IGG) Policy-Making
ELSIcon2022 • Panel Session 1 • May 31, 2022 Ellen Clayton, Stephanie Malia Fullerton, Amy McGuire, Natalie Ram Investigative genetic genealogy (IGG) is a novel technique for identifying…- Live
- Panel
- Emerging technologies - public opinion and policy
- Law, regulation, and governance
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Video
ELSIcon2022 Networking Session: Ethical Aspects of Reproductive Genetic Carrier Screening: Sharing Insights
ELSIcon2022 • Networking Session • May 31, 2022 Lisa Dive, Ainsley Newson We invite congress attendees with interests in reproductive genetic carrier screening (RGCS) to join us for a discussion…- Live
- Networking Session
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Video
ELSIcon2022 Flash: Latina women’s knowledge of, preferences for, and experiences with prenatal genetic testing: A scoping review
ELSIcon2022 • Flash • May 27, 2022 Natalie Grafft, Maria Pineros Leano, Andrew Dwyer Background: The American College of Obstetricians and Gynecologists recommends prenatal genetic testing (PGT) be…- Uptake of genetic testing
- Genetic testing and screening
- Flash
- Pre-Recorded
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Video
ELSIcon2022 Paper: Translating Genomic Science: How Genetic Counselors Navigate Ethical and Professional Dilemmas in the 21st Century
ELSIcon2022 • Paper • June 2, 2022 Susan Markens With the acceleration of new genetic discoveries and testing techniques in the first decades of the twenty-first century, genomic technologies…- Live
- Paper
- Genetic Counseling
- Genetic testing and screening