The topics page enables quick access to all resource types on
the platform, organized by relevance to your topic.
Popular Searches
Featured Topics
Featured Topics
91 - 100 of 221 Topics
-
Video
ELSIcon2022 Paper: Supporting Shared Decision Making for Parents of Infants/Young Children with Disorders/Differences of Sex Development: Creation of a Genetic Testing Decision Aid
ELSIcon2022 • Paper • June 2, 2022 Sophie Lightfoot, Melissa Gardner, Meg Carley, Larry Gruppen, Lauren Mohnach, Jodie Johnson, Dawn Stacey, David Sandberg, Kristina Suorsa-Johnson…- Live
- Paper
- tools
- Genetic testing and screening
-
Video
ELSIcon2022 Panel: Will it be easier to cure sickle cell disease through gene therapy than prevent the disease through pre-implantation genetic testing for the selection of unaffected embryos?
ELSIcon2022 • Panel • May 27, 2022 Joshua Combs, Sigal Klipstein, Jeanne O'Brien, Erin Rothwell Sickle cell disease (SCD) is an inherited hemoglobinopathy that results in a pattern of early…- Pre-Recorded
- Panel
- Access to genetic screening and therapies
- Gene therapy and gene editing
-
Video
Will it be easier to cure sickle cell disease through gene therapy than prevent the disease through pre-implantation genetic testing for the selection of unaffected embryos?
ELSIcon2022 • Pre-recorded Flash Jeanne O'Brien, MD, MSc - Shady Grove Fertility, Rockville MD Sigal Klipstein, MD - InVia Fertility Specialists Joshua Combs - Eunice Kennedy Shriver National…- gene therapy
- Gene Editing
-
Video
ELSIcon2022 Late-Breaking: Is a gene running in your family? Perceptions of responsibility to inform relatives about genetic cancer predisposition and risk management: an in-depth qualitative Swiss-Korean comparative analysis
ELSIcon2022 • Networking Session • Late-breaking Abstracts • May 31, 2022 Monica Aceti This study examines the different meanings of responsibility to disclose to family about genetic…- Live
- Networking Session
- Late-breaking Abstracts
- Disclosure of genetic risk information to relatives
- Genetic Counseling
-
Video
Investigating an Ethos of Duty in Precision Medicine Research Calls for Minority Participation
ELSIcon2022 • Pre-recorded Paper Rachel Bailey, ABD - University of Georgia, Graduate Student Teaching Assistant: Investigating an Ethos of Duty in Precision Medicine Research Calls…- Education
- public reception of genetic science
-
Video
ELSIcon2022 Paper: In the Shadows of Virtual Family Trees
ELSIcon2022 • Paper • May 27, 2022 Amy McGuire, André Brock, Katrina Ellis, Lynette Hammond Gerido Technology is changing the ways in which we relate to each other, create knowledge, and share…- Data and data stewardship
- Education and public reception of genetic science
- Paper
- Pre-Recorded
-
Video
ELSIcon2022 Paper: Resisting an old vice, or how polygenic risk information can do the most good
ELSIcon2022 • Paper • May 27, 2022 Jackson Ennis, Richard Sharp, Joel Pacyna Once upon a time, polygenic risk information was mostly a proprietary feature of direct-to-consumer genetic testing.…- polygenic risk
- Education and public reception of genetic science
- Paper
- Pre-Recorded
-
Video
Genomic Imaginaries: Sparking Dialogue between ELSI and Literary Studies
ELSI Friday Forum • February 11, 2022 As long as genetics research has been pursued, authors within and outside of the scientific establishment have crafted narratives to make sense of…- Humanities
- Post-genomics
- Literature and genetics
-
Video
ELSIcon2022 Paper: Investigating an Ethos of Duty in Precision Medicine Research Calls for Minority Participation
ELSIcon2022 • Paper • May 27, 2022 Rachel Bailey A rhetorical utility of identity may provide a novel method of inquiry for bioethics research. To increase diversity of Precision Medicine (PM…- Pre-Recorded
- Paper
- Motivation to participate in research
- Education and public reception of genetic science
-
Video
ELSIcon2022: Paper Session 9
ELSIcon2022 • Paper Session 9 • June 2, 2022 Includes discussion material from Erin Burke, Ilaria Galasso, and Crystal Gonzalez.- Live
- Paper
- equity and justice in genetics
- Education and public reception of genetic science