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Publication

Hope versus reality: Parent expectations of genomic testing

Patient Educ Couns

Donohue, K. E., Dolan, S. M., Watnick, D., Gallagher, K. M., Odgis, J. A., Suckiel, S. A., Teitelman, N., Gelb, B. D., Kenny, E. E., Wasserstein, M. P., Horowitz, C. R., Bauman, L. J.

2021

Clinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): 1U01HG0096108

Publication

Incidental findings in the era of whole genome sequencing?

Hastings Cent Rep

Parens, E., Appelbaum, P., Chung, W.

2013

Clinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): R21 HG006596, R01 HG006600, P20 HG005535

Publication

Informed consent for return of incidental findings in genomic research

Genet Med

Appelbaum, P. S., Waldman, C. R., Fyer, A., Klitzman, R., Parens, E., Martinez, J., Price, W. N. 2nd, Chung, W. K.

2014

Clinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): R21 HG006596, R01 HG006600, P20 HG005535-02

Publication

Researchers' views on informed consent for return of secondary results in genomic research

Genet Med

Appelbaum, P. S., Fyer, A., Klitzman, R. L., Martinez, J., Parens, E., Zhang, Y., Chung, W. K.

2015

Clinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): R21 HG006596, R01 HG006600, P50 HG007257

Publication

Genome sequencing and carrier testing: Decisions on categorization and whether to disclose results of carrier testing

Genet Med

Himes, P., Kauffman, T. L., Muessig, K. R., Amendola, L. M., Berg, J. S., Dorschner, M. O., Gilmore, M., Nickerson, D. A., Reiss, J. A., Richards, C. S., Rope, A. F., Simpson, D. K., Wilfond, B. S., Jarvik, G. P., Goddard, K. A. B.

2017

Clinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): UM1HG007292, U01HG007307, U01HG006375

Publication

Are genome-edited micro-organisms covered by Directive 2009/41/EC?—implications of the CJEU’s judgment in the case C-528/16 for the contained use of genome-edited micro-organisms

Journal of Law and the Biosciences

Hans-Georg Dederer, David Hamburger

2022

Publication

Are genome-edited micro-organisms covered by Directive 2009/41/EC?—implications of the CJEU’s judgment in the case C-528/16 for the contained use of genome-edited micro-organisms

Journal of Law and the Biosciences

Hans-Georg Dederer, David Hamburger

2022

Publication

Participant understanding of informed consent in a multidisease community-based health screening and biobank platform in rural South Africa

International Health

Ngwenya, Nothando, Luthuli, Manono, Gunda, Resign, Gumede, Ntombizonke A., Adeagbo, Oluwafemi, Nkosi, Busisiwe, Gareta, Dickman, Koole, Olivier, Siedner, Mark, Wong, Emily B., Seeley, Janet

2020

Publication

Key challenges in bringing CRISPR-mediated somatic cell therapy into the clinic

Genome Med

Dianne Nicol, Lisa Eckstein, Michael Morrison, Jacob S. Sherkow, Margaret Otlowski, Tess Whitton, Tania Bubela, Kathryn P. Burdon, Don Chalmers, Sarah Chan, Jac Charlesworth, Christine Critchley, Merlin Crossley, Sheryl de Lacey, Joanne L. Dickinson, Alex W. Hewitt, Joanne Kamens, Kazuto Kato, Erika Kleiderman, Satoshi Kodama, John Liddicoat, David A. Mackey, Ainsley J. Newson, Jane Nielsen, Jennifer K. Wagner, Rebekah E. McWhirter

2017

Publication

Secondary researchers' duties to return incidental findings and individual research results: A partial-entrustment account

Genet Med

Richardson, Henry S., Cho, Mildred K.

2012

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Hope versus reality: Parent expectations of genomic testing

Incidental findings in the era of whole genome sequencing?

Informed consent for return of incidental findings in genomic research

Researchers' views on informed consent for return of secondary results in genomic research

Genome sequencing and carrier testing: Decisions on categorization and whether to disclose results of carrier testing

Are genome-edited micro-organisms covered by Directive 2009/41/EC?—implications of the CJEU’s judgment in the case C-528/16 for the contained use of genome-edited micro-organisms

Are genome-edited micro-organisms covered by Directive 2009/41/EC?—implications of the CJEU’s judgment in the case C-528/16 for the contained use of genome-edited micro-organisms

Participant understanding of informed consent in a multidisease community-based health screening and biobank platform in rural South Africa

Key challenges in bringing CRISPR-mediated somatic cell therapy into the clinic

Secondary researchers' duties to return incidental findings and individual research results: A partial-entrustment account

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