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Publication
Shifting to a model of donor conception that entails a communication agreement among the parents, donor, and offspring
BMC Medical Ethics -
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Video
ELSIcon2022 Paper: Resisting an old vice, or how polygenic risk information can do the most good
ELSIcon2022 • Paper • May 27, 2022 Jackson Ennis, Richard Sharp, Joel Pacyna Once upon a time, polygenic risk information was mostly a proprietary feature of direct-to-consumer genetic testing.…- polygenic risk
- Education and public reception of genetic science
- Paper
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Publication
Recommendations for returning genomic incidental findings? We need to talk!
Genet MedClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): P50HG003374, 1R21HG00612, P50HG004488, 1R01HG006615, HG005491, U01HG006507, U01HG006375, R01HG005092, R01HG002213… -
Publication
Public consultation in bioethics. What's the point of asking the public when they have neither scientific nor ethical expertise?
Health Care Analysis: An International Journal of Health Care Philosophy and PolicyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
The emotional journey of adapting to prenatally identified trisomy X
Journal of Genetic Counseling -
Publication
Widening the lens of actionability: A qualitative study of primary care providers’ views and experiences of managing secondary genomic findings
European Journal of Human Genetics -
Publication
Re-analysis of genomic data: An overview of the mechanisms and complexities of clinical adoption
Genetics in Medicine