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Publication
Experience conducting a community-engaged student research project involving an underrepresented community: A reflective essay
Journal of Genetic Counseling -
Publication
Human Genome Diversity Project (HGDP): Impact on indigenous communities
Nature Pub. GroupDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
An autonomy-based justification for intellectual property rights of indigenous communities
Environmental EthicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Pharmacogenetic research in partnership with American Indian and Alaska Native communities
Pharmacogenomics -
Publication
How should communities be meaningfully engaged (if at all) when setting priorities for biomedical research? Perspectives from the biomedical research community
BMC Medical EthicsBorthwick, Evertsz, and Pratt find support for community engagement in biomedical research priority-setting, but no consensus on what ethical purpose it should serve or how it should be done. -
Publication
Extending the CARE Principles from tribal research policies to benefit sharing in genomic research
Frontiers in GeneticsCarroll and colleagues analyze the content of research governance documents from 26 U.S. tribal communities and recommend the addition of explicit requirements for benefit sharing. -
Publication
Politics, culture, and governance in the development of prior informed consent in indigenous communities
Current AnthropologyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…