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Video
ELSIcon2022 Panel: Engagement with Historically Marginalized Communities: Methods, Positionality and ELSI in Precision Medicine Research
ELSIcon2022 • Panel Session 12 • June 2, 2022 Kyle B. Brothers, Nanibaa' A. Garrison, Maya Sabatello, Amy Lemke The practice of community engaged research is grounded in ethical, practical,…- Live
- Panel
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Publication
Indigenous data sovereignties and data sharing in biological anthropology
American Journal of Biological Anthropology -
Publication
Operationalizing the CARE and FAIR Principles for Indigenous data futures
Scientific Data -
Publication
Ethical and equitable digital health research: Ensuring self-determination in data governance for racialized communities
Cambridge Quarterly of Healthcare Ethics -
Publication
Experience conducting a community-engaged student research project involving an underrepresented community: A reflective essay
Journal of Genetic Counseling -
Publication
Data sharing and community-engaged research
ScienceSabatello and colleagues discuss areas of tension between the community-engaged research and data sharing movements including incentives and benefit sharing; group harm and power structures; and… -
Publication
Human Genome Diversity Project (HGDP): Impact on indigenous communities
Nature Pub. GroupDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
An autonomy-based justification for intellectual property rights of indigenous communities
Environmental EthicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Pharmacogenetic research in partnership with American Indian and Alaska Native communities
Pharmacogenomics