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121 - 130 of 1406 Topics
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Grant Abstract
Genetic Privacy and Identity in Community Settings - GetPreCiSe
Concerns about privacy and personal identity impede use of data about genomic variation, phenotypes, demographics, and exposures from large numbers of people to uncover the contributions of such…- Attitude
- Automobile Driving
- base
- Belief
- Benefits and Risks
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Publication
Genes, patents, and indigenous peoples: Biomedical research and Indigenous peoples' rights
Cultural Survival QuarterlyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Overvaluing individual consent ignores risks to tribal participants
Nature Reviews Genetics -
In the Media
Training the Next Generation of Indigenous Data Scientists
The New York Times |Sabrina Imbler- Indigenous Communities
- Data Scientist
- investigator training
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Video
ELSIcon2022 Paper: Cultivating just & equitable genomics research partnerships with community health centers
ELSIcon2022 • Paper • June 2, 2022 Johanna Crane, Carolyn Neuhaus Research partnerships with community health centers serving ethnically and economically diverse communities present an…- Live
- Paper
- health disparities
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Video
ELSIcon2022 Panel: Out of the tower and onto the ground: engaging communities and scientists in emergent research priorities
ELSIcon2022 • Panel • May 27, 2022 Sara Ackerman, Julia Brown, Keolu Fox, Sandra Soo-Jin Lee ELSI scholars work under varied institutional support structures that make it difficult to…- Recruiting diverse participants to precision medicine research
- genomics research
- biobank
- equity and justice in genetics
- Panel
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Grant Abstract
Community-Based Evaluation of APOL1 Genetic Testing in African Americans
Endstage renal disease (ESRD) or kidney failure affects over 500,000 persons in the United States and disproportionately affects racial and ethnic minority populations. Compared to whites, African…- advocacy organizations
- Affect
- African American
- Age
- Anxiety
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Video
ELSIcon2022 Paper: Cystic Fibrosis Communities: Shifting Sites of Prognostic Imagination
ELSIcon2022 • Paper • May 27, 2022 Rebecca Mueller Long before COVID-19 made social distancing normal, people with cystic fibrosis already practiced such behaviors. Between the 1980s and the…- Lived experience of genetic conditions
- Race, disability, and gender studies
- Paper
- Pre-Recorded
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In the Media
Genomes Show the History and Travels of Indigenous Peoples
Scientific American |Keolu Fox- Indigenous Peoples
- Indigenous data