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Publication
Ask the people: Developing guidelines for genomic research with Aboriginal and Torres Strait Islander peoples
BMJ Glob Health -
Grant Abstract
Informed Consent & Concepts of Race in Genetic Research
To advance understanding of the ethical dimensions of genetic research for diverse populations this project will address questions that take into account concerns of the individual, scientific…- African
- African American
- behavioral /social science research tag
- breast neoplasms
- culture
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Publication
Rules of engagement: Perspectives on stakeholder engagement for genomic biobanking research in South Africa
BMC Medical Ethics -
Collection
Establishing Gender-Affirming Genetic Counseling Services
Transgender (trans) describes an individual whose gender identity differs from the sex they were assigned at birth. In the U.S., approximately 2.6 million people (~1% of the population) identify as…- TGDI
- gender affirming care
- intersex
- transgender
- gender-diverse
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Publication
Genetics, history, and identity: The case of the Bene Israel and the Lemba
Cult Med Psychiatry -
News
ELSI in Review • February 2024
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our February 2024 set explores ethical considerations for… -
Publication
Risk, reward, and the double-edged sword: Perspectives on pharmacogenetic research and clinical testing among Alaska Native people
American Journal of Public Health -
Publication
Lei niho palaoa and digital tools to safeguard against the illicit use of ancient DNA
Hawaiian Archeology -
News
Using a Family Advisory Council to Understand the Informational Needs of Prospective Gene Therapy Trial Participants: An Interview with the Co-PIs of the SCDGENE CERA Working Group
Sickle cell disease (SCD), characterized by severe pain crisis and progressive organ damage as well as early death, is one of the most common inherited blood disorders in the world. However, since 90…- sickle cell disease
- gene therapy
- Sickle Cell
- gene therapies
- community based participatory research