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The Disability Rights Critique of Technologies that Eliminate Human Genetic Variation
The development and use of an expanding range of medical technologies that yield genetic information about embryos and fetuses has raised ethical questions about whether and how this increasingly… -
Grant Abstract
Genetic Testing Immigration and Family Reunification: Impact on Hispanic Families
This project will address the ethical, legal and social implications of the use of genetic testing as part of US immigration procedures for family reunification. Last year, approximately two-thirds…- Address
- Advocate
- African
- Anecdotes
- Attitude
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Job Posting
Clinical Ethicist
The Clinical Ethicist contributes to initiatives that support the continuing evolution of integrated ethics programming at Children’s Health System of Texas (CHST). The incumbent is responsible for…- Clinical Ethics
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Collection
How Literature and Film Shape and Reflect Public Attitudes toward Genetics
Powerful works of art enrich our understanding of the issues that matter most in our lives—not least in controversial areas of the biosciences. By exploring the dense cultural networks that shape…- Narratives
- Film
- Literature
- public attitudes
- race and genetics
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Grant Abstract
The Human Genome Project: A Choices and Challenges Forum
A full day public education forum on the HGP, to be held in 1992, is being planned as part of the Choices and Challenges forum series at Virginia Tech. This series was established in 1985 to provide…- Ethics
- genetic techniques
- Genome
- health care cost /financing
- Health education
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Video
ELSIcon2022 Paper: Toward an anthropology of rare disease
ELSIcon2022 • Paper • May 27, 2022 Meghan Halley, Colin Halverson, Marsha Michie Rare genetic diseases affect an estimated 330 million individuals worldwide. These patients often struggle to…- Lived experience of genetic conditions
- equity and justice in genetics
- Paper
- Pre-Recorded
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Video
ELSIcon2022 Paper: Genetic data and the collective good: participants as leaders to reconcile individual and public interest
ELSIcon2022 • Paper • June 2, 2022 Ilaria Galasso, Susi Geiger This paper problematizes the notion of collective good in the contest of medical research and juxtaposes consequentialist and…- Live
- Paper
- Data and data stewardship
- equity and justice in genetics
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Video
ELSIcon2022 Paper: Neglected ELSI in Biobanking: Addressing Issues of Governance, Stewardship, and Equity
ELSIcon2022 • Paper • June 3, 2022 Roselle Ponsaran, Kyle B. Brothers, Aaron Goldenberg, Jean Cadigan The promotion of precision medicine has led to increased interest in larger collections…- Live
- Paper
- equity and justice in genetics
- Data and data stewardship
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