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Grant Abstract
Genetics, Vulnerable Populations and Health Disparities
The ultimate aim of genetic research is to improve human health and prevent disease. One key measure of success in translating new genetic knowledge into improved health will be the extent to which…- Asthma
- behavioral /social science research tag
- Clinical Research
- Diabetes Mellitus
- Ethics
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Grant Abstract
The Effect of Electronic Informed Consent Information (EICI) on Residual Newborn Specimen Research
Obtaining adequate informed consent from potential research participants is a significant challenge for biobank-dependent research. To maintain public trust and support, it is important to establish…- Attitude
- Authorization documentation
- Award
- base
- biobank
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Publication
Making sense of it all: Ethical reflections on the conditions surrounding the first genome-edited babies
Wellcome Open Research -
Publication
The ethics of neurogenetics research in Africa: Considerations and guidelines
Elsevier Academic Press -
Publication
Alaska Native genomic research: Perspectives from Alaska Native leaders, federal staff, and biomedical researchers
Genetics in Medicine -
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Grant Abstract
Creating an initial ethics framework for biomedical data modeling by mapping and exploring key decision points
Project Narrative This study would be the first to develop an initial bioethics framework to meet a critical gap in biomedical data modeling activities, where the downstream consequences of…- Accountability
- Address
- Area
- Artificial intelligence
- base
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