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Publication
How many billions is enough? Prioritizing profits over patients with cystic fibrosis
Pediatric PulmonologyMcGarry and colleagues criticize Vertex pharmaceuticals, the sole manufacturer of cystic fibrosis transmembrane conductance regulator (CFTR) modulators, for drastically decreasing its copayment… -
Publication
Generalisation of genomic findings and applications of polygenic risk scores
BMC Medical Genomics -
Publication
Is it just for a screening program to give people all the information they want?
The American Journal of Bioethics -
Publication
Structural influences on consent decisions in participatory health research in Eswatini
Journal of Empirical Research on Human Research Ethics -
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Publication
Guideline for feedback of individual genetic research findings for genomics research in Africa
BMJ Global Health -
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Publication
Access to data and intellectual property: Scientific exchange in genome research
National Academy Press -
Publication
Populations and genetics: Legal and socio-ethical perspectives
Martinus Nijhoff Publishers -