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Publication
A participant-centered approach to understanding risks and benefits of participation in research informed by the Kidney Precision Medicine Project
American Journal of Kidney Diseases -
Publication
Challenges and prospects of implementing the access and benefit sharing regime of the Convention on Biological Diversity in Africa: The case of Ethiopia
International Environmental Agreements: Politics, Law and Economics -
Publication
A scenario-based methodology for analyzing the ethical, legal, and social issues in genomic data sharing
Journal of Empirical Research on Human Research Ethics -
Collection
Who Are We Now? Genetics, Genomics, and the Question of the Human
“We used to think our fate was in the stars,” quipped James Watson in a Time magazine piece announcing the Human Genome Project (HGP). “Now we know, in large measure, our fate is in our genes.”…- Epigenetics
- genetic identity
- bias
- Justice
- genetic information
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Publication
Patient priorities for fulfilling the principle of respect in research: Findings from a modified Delphi study
BMC Medical EthicsParticipants in this study by Kraft, Duenas, and Shah said informed consent and interpersonal interactions were most important to their experience of respect in the research context. -
Grant Abstract
Genome Center Education Program
The Human Genome Center at the University of Michigan is supporting projects designed to update and inspire secondary science teachers in the area of genome technology and its implications. The… -
Publication
What we know about effective public engagement on CRISPR and beyond
PNASScheufele and colleagues review existing modalities to engage the public in decision-making about emerging technologies and outline a pathway for effective deliberation on gene editing. -
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