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Genetic testing for deafness is now a reality with the identification of Connexin 26 (Cx26, GJB2) as a cause of up to 50% of nonsyndromic sensorineural deafness. Because deafness is viewed as a…

This ethnographic study examines the social and ethical implications of the use of categories of race and ethnicity in human genome research. The specific goals of the proposed research are: 1) to…

This project builds on an exploratory study of psychosocial and ethnocultural factors related to intentions to obtain genetic testing for heritable colon cancer, and a pilot study of genetic…

This is a qualitative, ethnographic study that is designed to generate a number of empirical examples of community review in action. Project investigators have established a working relationship with…

This sociological study is a prospective field research project on the development of the human genome initiative during the first half of the 1990's. The study is examining how the genomics…

How did scientists come to view organisms and molecules as information storage and retrieval systems? By which processes did life come to be conceptualized as a text written in a natural language? By…

As the scientific study of genetic variation between human groups gains momentum around the world, traditional questions of research ethics are being transformed in ways that challenge our…

The specific aims of this project are: to identify the ethical, legal, and social implications of the HGP from the perspectives of two Native American communities, with particular emphasis on Native…

This project provides support for the 7th Biennial Symposium on Minorities, the Medically Underserved &Cancer. The Symposium was held February 27-March 3, 1999, at the Grand Hyatt Washington…

Genomic research is rapidly producing new opportunities for understanding disease biology, and promises to enhance health care and health outcomes significantly through improved strategies for…