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Publication
A game theoretic approach to balance privacy risks and familial benefits
Scientific ReportsGuo and colleagues use a game theoretic approach to model how consumers of third-party interpretation (TPI) services may act as they weigh the benefits of sharing their genetic data against the… -
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Publication
Informed consent in international health research
Journal of Empirical Research on Human-Research Ethics -
Grant Abstract
Minors At-Risk of Future Disease: Their Role in Research
This study will explore the process by which families at increased risk of adult-onset disease decide to involve their children in research on genetic susceptibility. Through interviews with parents…- adolescence (12-20)
- African American
- age difference
- breast neoplasms
- caucasian American
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Publication
Family secrets: Experiences and outcomes of participating in direct-to-consumer genetic relative-finder services
American Journal of Human GeneticsGuerrini and colleagues surveyed 23,196 genetic relative-finder (GRF) service participants and found that discoveries of genetic relatives are common. Most respondents reported that the discoveries… -
Grant Abstract
Genetics and genomic research in Uganda: Towards context specific ethics guidelines
The overall goal of this proposed project is to systematically develop culturally appropriate model ethics guidelines for conducting genetics and genomics research (GGR) in Uganda. This goal will be…- Africa
- Africa South of the Sahara
- authority
- Awareness
- Bioethics
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Grant Abstract
Ethnicity, Citizenship, Family: Identity after the HGP
This project will bring together an interdisciplinary working group of scholars to explore these questions. During a three year period, it will meet to develop the language, criteria, and conceptual…- behavioral /social science research tag
- community
- culture
- Ethnic group
- family structure /dynamics
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Grant Abstract
Outcomes of Cx26 Testing in Deaf/Hard of Hearing Adults
Genetic testing for deafness is now a reality with the identification of Connexin 26 (Cx26, GJB2) as a cause of up to 50% of nonsyndromic sensorineural deafness. Because deafness is viewed as a…- 18 year old
- Address
- Adult
- Affect
- Anxiety