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ELSIcon2022 Paper: Disrupting the status quo: a new model for benefit sharing in genomics research, a case study from South Africa
ELSIcon2022 • Paper • June 2, 2022 Erin Burke, Michèle Ramsay, June Fabian Genetics researchers have earned the label “extractive biocolonialists” because they collect samples and fail to…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Grant Abstract
Ethical and Social Issues in the Study of Genetics of Complex Traits
The long-term objective of this Pathway to Independence Award (K99/ROO) is to train to become an independent researcher in bioethics with a strong interdisciplinary foundation in genetics and…- Address
- Advocacy
- Attitude
- Autistic Disorder
- Award
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Publication
Diverse parental perspectives of the social and educational needs for expanding newborn screening through genomic sequencing
Public Health GenomicsTimmins and colleagues find that mothers are supportive of expanding newborn screening for both medical and personal utility and express a desire for more education and control of the process. -
Grant Abstract
Religion and Genomics: Navigating Pathways and Perspectives of Patient Care
Individuals' religious beliefs and practices can be implicated and challenged as they deal with the consequences of advances in genomics. While many people can reconcile these two bodies of…- Church
- Clergy
- Clinic
- Clinical
- Collaborations
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Grant Abstract
West African Bioethics Training Program
Accompanying the increase in research activities worldwide, particularly in developing countries where the citizens are poor, vulnerable and un-empowered, is increasing concern about the ethical…- Advisory Committees
- Africa
- African
- Area
- authority
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Publication
Mapping ethical, legal, & social implications (ELSI) of assisted reproductive technologies
Journal of Assisted Reproduction and Genetics -
Publication
Challenges faced by behavioral genetic studies: Researchers perspective from the MENA region
Current Genomics -
Publication
Pilot study of a decision aid on BRCA1/2 genetic testing among Orthodox Jewish women
Familial Cancer -
Publication
Ethical considerations for genetic research in low-income countries: Perceptions of informed consent, data sharing, and expectations in Nicaragua
European Journal of Human Genetics