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Grant Abstract
University of Michigan Training Program in ELSI Research
Genetics and genomics research are rapidly generating scientific discoveries, technological advances, and clinical applications, each with important implications for medicine and public health. In…- Michigan
- Research
- Training Programs
- Universities
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Grant Abstract
Human Genome Project: Science, Law, and Social Change
This conference, The Human Project: Science, Law, and Social Change in the 21st Century, will bring together 300-500 physicians, lawyers, consumers, ethicists, and scientists to explore the impact of…- biotechnology
- Ethics
- genetic disorder diagnosis
- genetic techniques
- Genetics
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Grant Abstract
Genetic Privacy and Identity in Sexual and Gender Minorities: GetPrISM
Sexual and gender minorities (SGMs) experience significant disparities in health and health care. These inequities result from complex interactions among social, political, environmental, and genomic…- Academic Medical Centers
- Address
- Advocate
- Affect
- Attitude
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Grant Abstract
Ensuring Patients Informed Access to Noninvasive Prenatal Testing
Noninvasive prenatal genetic testing (NIPT) is revolutionizing the practice of obstetrics. However, the technol- ogy is expanding rapidly and in a way that has outpaced the rate at which evidence-…- Aneuploidy
- Attitude
- bench to bedside
- Clinical
- clinical practice
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Grant Abstract
African American Haplotype Map Engagement and Follow-up
This is a proposal for undertaking community engagement, donor collection, and follow-up in four predominantly African American towns in the Oklahoma City metropolitan area. The precise four towns…- African American
- biotechnology
- blood chemistry
- Clinical Research
- Gene Expression
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Grant Abstract
DNA Fingerprinting and Civil Liberties
The ethical, legal, and social issues arising from the use of DNA forensics have not been fully explored. This project aims to investigate the various positions on new and controversial issues…- behavioral /social science research tag
- Behavioral Genetics
- confidentiality
- Data Collection
- Epidemiology
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Grant Abstract
NSIGHT: Sequencing of Newborn Blood Spot DNA to Improve and Expand Newborn Screening
The purpose of the Newborn Sequencing In Genomic medicine and public HealTh (NSIGHT) program is to explore, in a limited but deliberate manner, the implications, challenges and opportunities…- base
- Biochemical
- Biological Assay
- Blood
- Child
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Grant Abstract
An ELSI-Integrated Evaluation of the Family-Level Utility of Pediatric Genomic Sequencing
PROJECT SUMMARY/ABSTRACT Substantial resources have been devoted to policy evaluation of clinical genomic sequencing that hinge on the conceptualization and measurement of utility. However, most… -
Grant Abstract
Exploring parental perspectives on pediatric genome testing, research, and data management in a multicultural population
Project Narrative Racial/ethnic disparities in genomic testing and research participation threaten to exacerbate inequities in health outcomes, particularly in pediatrics.3-7 Given that current…- Algorithms
- Adolescent
- African American
- Asian
- Consent
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Grant Abstract
Genome Mapping: Implications for Health and Life Insurance
This project will examine the moral basis of, and legal and policy framework for, health and life insurance in light of the increase that the HGP is expected to generate in genetic screening capacity…- Ethics
- genetic mapping
- Genetics
- handbook
- health economics