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This sociological and historical study examines how the news media have presented information, findings and theories about genetics and behavior from 1945 to 1995. Specifically, it examines news…

This project investigates the area of newborn genetic screening programs and policies governing state sponsorship of genetic screening. Legal aspects of confidentiality and informed consent will be…

This study will focus on setting priorities in the screening, testing, counseling, and treatment of pre-symptomatic and contingent genetic conditions. Under the assumption that unlimited resources…

Noninvasive prenatal genetic testing, which utilizes cell-free fetal DNA and advances in sequencing technology, is revolutionizing the practice of obstetrics. While currently used as a screen for a…

The Institute of Medicine (IOM) through its Board on Health Sciences Policy established a panel of experts to evaluate issues in the development, application, and use of tests for genetic disorders.…

The goal of the proposed project is to address a well-documented lack of genetics education among health professionals, which is a rate-limiting step in the integration of genetics and genomics into…

The ELSI program of the Human Genome Project has successfully calmed the fears of most constituents regarding the potential for a "eugenic" misuse of modern genetic technology. However, one…

This pilot project will develop a World-Wide Web document, the ELSI Electronic Case Book, to introduce primary care physicians and non physician providers to their future roles as facilitators of the…

In their previous project, these investigators examined the ethical and legal issues raised by the prospect of using the products of human genome research for enhancement purposes. This work…

The overall goal is to study the licensing policies and practices of 24 academic institutions regarding their DNA-based patents. The proposed project is conceived as a pilot study that will test the…