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Video
ELSIcon2022 Paper: Dorothy, We’re Not in dbGaP Anymore: Emerging Cloud-Based Biomedical Data and Analysis Platforms and their Implications for Data Stewardship
ELSIcon2022 • Paper • June 3, 2022 Presented by: Sarah Nelson Jacklyn Dahlquist, Stephanie M. Fullerton Individual-level genomic, environmental, and linked health outcome data are being…- Live
- Paper
- Data and data stewardship
- precision medicine
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Video
ELSIcon2022 Panel: The All of Us Responsible Conduct of Research Training: Fostering Ethical and Socially Responsible Research with Data from All of Us Participants
ELSIcon2022 • Panel • May 27, 2022 Katherine Blinzinsky, Subhashini Chandrasekharan, Sonya Jooma The All of Us Research Program is an ambitious effort to enroll one million or more…- Pre-Recorded
- Panel
- Data and data stewardship
- precision medicine
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Video
ELSIcon2022 Late-Breaking: Impact of a direct-to-consumer (DTC) report on Alpha-1 antitrypsin deficiency (AATD) risk on clinical diagnosis of disease and on self-reported behaviors
ELSIcon2022 • Networking Session • Late-breaking Abstracts • June 2, 2022 Sarah Elson Background: Alpha-1 antitrypsin deficiency (AATD) is an autosomal co-dominant condition that predisposes…- Live
- Networking Session
- Late-breaking Abstracts
- precision medicine
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Video
ELSIcon2022 Late-Breaking: Concordance with Pharmacogenomic Clinical Decision Support Recommendations is High Following Preemptive Pharmacogenomic Testing
ELSIcon2022 • Networking Session • Late-breaking Abstracts • June 2, 2022 Kurt D. Christensen, Catherine Hajek, Joel Van Heukelom, Madison Hickingbotham, Amanda Massmann, Emilie Zoltick,…- Live
- Networking Session
- Late-breaking Abstracts
- tools
- precision medicine
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Video
ELSIcon2022: Flash Session 1
ELSIcon2022 • Flash Session 1 • May 31, 2022 Includes discussion material from Julie Beans, Cheng Chen, Stella Murphy, Nina Vo, Breana Rinker, Bridget Easler, and Sheethal Jose.- Live
- Flash
- Race, disability, and gender studies
- precision medicine
- reproductive genetics
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Video
ELSIcon2022 Paper: Seeking Diverse Inclusion in Bipolar Research: Lessons from a biobank
ELSIcon2022 • Paper • June 1, 2022 Karen Meagher, Monica Taylor-Desir How should biobanks recruit diverse cohorts from historically marginalized communities? Should they measure diversity via…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks