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Video
ELSIcon2022 Paper: Exploring Disparities and Equity Across the Newborn Screening System
ELSIcon2022 • Paper • June 1, 2022 Aaron Goldenberg, Beth Tarini, Natasha Bonhomme, Amy Gaviglio As with much of society, public health and medicine have been called to examine and act on…- Live
- Paper
- Population screening and public health genomics
- Genetic testing and screening
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Video
ELSIcon2022 Panel: The Ethics of Influence and Choice Architecture in Genomics: Where Have We Been and Where Are We Going?
ELSIcon2022 • Panel • June 3, 2022 Benjamin Berkman, Susanna McGrew, Leila Jamal In Western bioethics, patient choice and autonomy have historically carried the most weight in conversations…- Live
- Panel
- Uptake of genetic testing
- Genetic Counseling
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Publication
"Black Lives Matter and Black Research Matters": The African Society of Human Genetics' call to halt racism in science
Molecular Biology of the CellWonkam and colleagues present five key points for addressing neocolonial, racist practices in genomic research, including recognizing African-led contributions to science of the present and the past. -
Publication
"If relatives inherited the gene, they should inherit the data." Bringing the family into the room where bioethics happens
New Genetics and Society -
Publication
Commentary: Children and predictive genomic testing: Disease prevention, research protection, and our future
J Pediatr Psychol -
Publication
Do notions of risk inform patient choice? Lessons from a study of prenatal genetic counseling
Med Anthropol -
Publication
Children and predictive genomic testing: Disease prevention, research protection, and our future
J Pediatr Psychol -
Publication
Genetics patients' perspectives on clinical genomic testing
Per MedClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): R01-HG004500, P50-HG003390 -