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Publication
“Use it or lose it” as an alternative approach to protect genetic privacy in personalized medicine
Urologic Oncology -
Publication
Predictive genetic medicine -- a new concept of disease
Ashgate Pub.Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Video
Part 4. Assessing Access to Care in the Clinical Sequencing Evidence-Generating Research Consortium: Contexts and Challenges
Sara J. Knight, PhD - University of Utah ELSIconversations - April 16, 2021 The U.S. Department of Health and Human Services broadly defines access to care as: (1) entry to the health care system (…- precision medicine research
- Ethics of precision medicine
- ELSIconversations
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Publication
Molecular genetics in medicine: Advances, applications and ethical implications
Palgrave Macmillan UKDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Ethical issues in cellular and molecular medicine and tissue engineering
Journal of Cellular and Molecular MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Medicine against society: Lessons from the Third Reich
Journal of the American Medical AssociationDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
What does the Human Genome Project mean for medicine?
New Zealand Medical Association JournalDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Additional Resource
Consensus Study Report, Reproducibility and Replicability in Science, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2019)
This publication describes the results of a study of issues related to reproducibility and replicability of scientific research by the National Academies of Sciences, Engineering, and Medicine and…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Grant Abstract
Rational Integration of clinical SEquencing (RISE)
The advent of clinical genome sequencing to identify patients at risk for serious diseases and to tailor treatments promises to greatly improve health outcomes and provide a foundation for the…- Adopted
- Adoption
- Adult
- Area
- base
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Publication
Response to open peer commentaries: Distinguishing the “gift” from “donation” as a path toward reciprocity and relational ethics
American Journal of Bioethics