Advancing Ethical Engagement and Benefit Sharing Within International Collaborative Genomic Research Partnerships in Africa
Due to advances in genomic sequencing and reduced costs, the development of statistical techniques and technologies for analysis of large datasets, and a scientific interest in population-specific knowledge of the genetic and environmental bases of human diseases, Africa has witnessed an exponential increase in genomic research on the continent. The accumulation of vast amounts of samples and associated data offers opportunities for the scientific community and other stakeholders to translate knowledge into both commercial and noncommercial products. This has stimulated a range of questions and desires among scientists, research participants, policymakers, and funders, particularly in low- and middle-income countries. Guided by principles of fairness, solidarity, reciprocity, and epistemic justice (equity of participation in knowledge production, use, and circulation), many stakeholders expect the benefits of genomic research to be…
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