Rafael D. Escandon

Carole A. Federico, Ph.D.

Postdoctoral Fellow, Center for Biomedical Ethics

Institution: Stanford University

AREAS OF EXPERTISE

Translational Research, Clinical Trials, Animal Research, Research Ethics, Pain

Bryan Cwik, Ph.D.

Assistant Professor of Philosophy and University Studies, Portland State University

Institution: Portland State University

AREAS OF EXPERTISE

Emerging medical technologies, Genetics, Clinical research ethics

Jeremy R. Garrett, Ph.D.

Research Associate in Bioethics; Associate Professor of Pediatrics, University of Missouri-Kansas City School of Medicine

Institution: Children's Mercy Kansas City

AREAS OF EXPERTISE

Pediatric bioethics, Right to an Open Future, Return of Results, Duty to Rescue, Genetic Exceptionalism

Steven Joffe, M.D., M.P.H

Art and Ilene Penn Professor of Medical Ethics and Health Policy; Professor of Pediatrics

Institution: University of Pennsylvania Perelman School of Medicine

AREAS OF EXPERTISE

Research Ethics, Pediatric bioethics, ELSI Genomics, Science Policy

Liza-Marie Johnson, MD, MPH, MSB

Physician Ethicist

Institution: St. Jude Children's Research Hospital

AREAS OF EXPERTISE

Informed Consent, Pediatric bioethics, Consent for Genomic Testing, Pediatric Research, Best practices for clinical and research ethics consultation

Alison Bateman-House, PhD, MPH, MA

Assistant Profesor of Medical Ethics

Institution: NYU Grossman School of Medicine

AREAS OF EXPERTISE

gene therapy, Bioethics, Research Ethics, Clinical Trials, Pharmaceutical ethics

Julie Cakici, PhD, RN

Health Science Policy Analyst [C]

Institution: NIH’s All of Us Research Program

AREAS OF EXPERTISE

Consent for Genomic Testing, Infant, Newborn, Pediatric bioethics, ELSI Genomics, Ethical and organizational issues in biobanking

Cara L. Hunt, MA

Research Associate and Project Manager, Pediatric Gene Therapy and Medical Ethics Working Group (PGTME)

Institution: NYU Grossman School of Medicine

AREAS OF EXPERTISE

gene therapy, Clinical Trials, Pediatric Research

Stephanie L. Rouse

Research Technologies

Institution: Boston Children's Hospital

AREAS OF EXPERTISE

Genetic Testing, gene therapy, Physiology, Genetics, Molecular Biology and Microbiology , Neurobiology

Kyle B. Brothers, MD, PhD

Chief Scientific Officer

Institution: Norton Children's Research Institute Affiliated with the University of Louisville School of Medicine

AREAS OF EXPERTISE

Pediatric bioethics, Research Ethics, Genomic medicine, Biobank Ethics, Qualitative research

Curtis R Coughlin II, PhD, MS, MBE

Associate Professor of Pediatrics

Institution: University of Colorado

AREAS OF EXPERTISE

return of results, Clinical Trials, Clinical Ethics, Genetic Testing

Kelly V Naranjo

Graduate Student

Institution: New York University

AREAS OF EXPERTISE

Clinical Trials, Bioethics, Biology, CRISPR/Cas technology, nutrition

Emily S Bonkowski, ScM

Genetic counselor/PhD student

Institution: St. Jude Children's Research Hospital/Univ of Washington

AREAS OF EXPERTISE

Pediatric bioethics, Ethics of precision medicine, Rare Diseases, Population screening and public health genomics, Pediatric Neurology

Stephanie L. Rouse

Research Technologies

Institution: Boston Children's Hospital

AREAS OF EXPERTISE

Genetic Testing, gene therapy, Physiology, Genetics, Molecular Biology and Microbiology , Neurobiology

Kate Fultz Hollis, MS, MBI

Informatician

Institution: Oregon Health & Science University

AREAS OF EXPERTISE

Clinical Research, Clinical research ethics, clinician education, Biomedical informatics