Liza-Marie Johnson

Laura M. Beskow, M.P.H, Ph.D.

Ann Geddes Stahlman Chair in Medical Ethics, Professor of Health Policy

Institution: Vanderbilt University Medical Center

AREAS OF EXPERTISE

Human Research Protections, Informed Consent, Research Recruitment, Biobanking, Pragmatic Trials

Richard R. Sharp, Ph.D.

Director of the Mayo Clinic Biomedical Ethics Program, the Center for Individualized Medicine Bioethics Program and the Clinical and Translational Research Ethics Program

Institution: Mayo Clinic

AREAS OF EXPERTISE

Patient and provider views of genomic medicin, Biobanking, Role of Disease-Advocacy Organizations, Research Ethics, Best practices for clinical and research ethics consultation

Elisa J. Gordon, Ph.D., M.P.H.

Professor at Vanderbilt University Medical Center

Institution: Vanderbilt University Medical Center

AREAS OF EXPERTISE

Transplant ethics, Informed Consent, Behavioral interventions, implementation science, Health Disparities

Jeremy R. Garrett, Ph.D.

Research Associate in Bioethics; Associate Professor of Pediatrics, University of Missouri-Kansas City School of Medicine

Institution: Children's Mercy Kansas City

AREAS OF EXPERTISE

Pediatric bioethics, Right to an Open Future, Return of Results, Duty to Rescue, Genetic Exceptionalism

Steven Joffe, M.D., M.P.H

Art and Ilene Penn Professor of Medical Ethics and Health Policy; Professor of Pediatrics

Institution: University of Pennsylvania Perelman School of Medicine

AREAS OF EXPERTISE

Research Ethics, Pediatric bioethics, ELSI Genomics, Science Policy

Melissa K. Uveges, PhD, MA, RN

Assistant Professor

Institution: Boston College

AREAS OF EXPERTISE

Genetic Testing, Cascade screening, Familial disease, Pediatric Research

Julie Cakici, PhD, RN

Health Science Policy Analyst [C]

Institution: NIH’s All of Us Research Program

AREAS OF EXPERTISE

Consent for Genomic Testing, Infant, Newborn, Pediatric bioethics, ELSI Genomics, Ethical and organizational issues in biobanking

Shlomit Zuckerman, PhD, LLB

Deputy Director Center (in progress) for Bioethics and Law

Institution: Tel Aviv University Faculty of Medicine

AREAS OF EXPERTISE

Best practices for clinical and research ethics consultation

James M. DuBois, DSc, PhD

Director, Bioethics Research Center; Bander Professor of Medical Ethics

Institution: Washington University in St. Louis

AREAS OF EXPERTISE

Bioethics, data sharing policy, Informed Consent, Research integrity, ELSI

Jeffrey P. Spike, MA, PhD

Clinical Professor and Scholar in Residence

Institution: Children's National Hospital and George Washington University

AREAS OF EXPERTISE

decision-making capacity, Best practices for clinical and research ethics consultation, children and adolescent/pediatrics, children and adolescent/pediatrics, Medical Education

Lisa S. Parker, PhD

Dickie, McCamey & Chilcote Professor of Bioethics and Director, Center for Bioethics & Health Law

Institution: University of Pittsburgh

AREAS OF EXPERTISE

return of results, Informed Consent, pharmacogenomics, Ethics of precision medicine, genomic research

Cara L. Hunt, MA

Research Associate and Project Manager, Pediatric Gene Therapy and Medical Ethics Working Group (PGTME)

Institution: NYU Grossman School of Medicine

AREAS OF EXPERTISE

gene therapy, Clinical Trials, Pediatric Research

Rafael D. Escandon, DrPH, PhD, MPH

Principal and Founder

Institution: DGBI Consulting, LLC

AREAS OF EXPERTISE

Clinical Trials, Clinical Research, Clinical research ethics, gene therapy, Pediatric bioethics

Megan Doerr, MS, LGC

Director, Applied ELSI Research

Institution: Sage Bionetworks

AREAS OF EXPERTISE

ELSI Issues in Large-scale Population Cohort Studies, Open science, Informed Consent, participatory research, algorithmic harms

Kyle B. Brothers, MD, PhD

Chief Scientific Officer

Institution: Norton Children's Research Institute Affiliated with the University of Louisville School of Medicine

AREAS OF EXPERTISE

Pediatric bioethics, Research Ethics, Genomic medicine, Biobank Ethics, Qualitative research

Michelle N. Meyer, PhD, JD

Associate Professor and Chair, Department of Bioethics and Decision Sciences

Institution: Geisinger

AREAS OF EXPERTISE

Polygenic risk scores, Informed Consent, Common Rule, genetics and reproduction, Direct to Consumer Genetic Testing

Stephanie A Kraft, JD

Assistant Professor

Institution: Seattle Children's Research Institute

AREAS OF EXPERTISE

Research Ethics, Informed Consent, Ethical considerations for machine learning/artificial intelligence in research/healthcare, Community Engagement, Health Equity

Emily S Bonkowski, ScM

Genetic counselor/PhD student

Institution: St. Jude Children's Research Hospital/Univ of Washington

AREAS OF EXPERTISE

Pediatric bioethics, Ethics of precision medicine, Rare Diseases, Population screening and public health genomics, Pediatric Neurology

Benjamin S Wilfond, MD

Professor

Institution: Seattle Childrens Research Institute

AREAS OF EXPERTISE

Research Ethics, Trisomy, Disability ethics, Cystic Fibrosis, Informed Consent

Sarah LeBaron von Baeyer, PhD

Director of Ethics and Engagement

Institution: Variant Bio

AREAS OF EXPERTISE

Community Engagement, Return of Results, benefit sharing, Informed Consent, Commercial Sectors