Richard R. Sharp

Ph.D.
Director of the Mayo Clinic Biomedical Ethics Program, the Center for Individualized Medicine Bioethics Program and the Clinical and Translational Research Ethics Program

Institution(s):

Mayo Clinic
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Methods

Mixed Methods
Survey Methods
Normative Analysis

Disciplines

Philosophy
Bioethics

Areas of Expertise

Patient and provider views of genomic medicin
Biobanking
Role of Disease-Advocacy Organizations
Research Ethics
Best practices for clinical and research ethics consultation

Publications

Participant choices for return of genomic results in the eMERGE Network
Patient reactions to receiving negative genomic screening results by mail
Failure to follow up on a medically actionable finding from direct to consumer genetic testing: A case report
At a moment's notice: Community Advisory Board perspectives on biobank communication to supplement broad consent
Returning genomic results in a Federally Qualified Health Center: The intersection of precision medicine and social determinants of health
Assessing the stability of biobank donor preferences regarding sample use: Evidence supporting the value of dynamic consent
Neutral, negative, or negligible? Changes in patient perceptions of disease risk following receipt of a negative genomic screening result
Ethical priority of the most actionable system of biomolecules: The metabolome
Cohort profile: The right drug, right dose, right time: Using genomic data to individualize treatment protocol (RIGHT Protocol)
Where will we draw the line? Public opinions of human gene editing
Managing the unimaginable: Biobank participant views on reconsent for whole genome sequencing of stored biospecimens
Assessing optimism and pessimism about genomic medicine: Development of a genomic orientation scale
Should pre-test genetic counseling be required for patients pursuing genomic sequencing? Results from a survey of participants in a large genomic implementation study
African American living donors’ attitudes about APOL1 genetic testing: A mixed methods study
The Return of Actionable Variants Empirical (RAVE) study, a Mayo Clinic genomic medicine implementation study: Design and initial results
Making pre-test genomic counseling optional: Lessons from the RAVE study
Ethical considerations related to return of results from genomic medicine projects: The eMERGE network (phase III) experience
Direct-to-consumer testing 2.0: Emerging models of direct-to-consumer genetic testing
Developing a process for returning medically actionable genomic variants to Latino patients in a federally-qualified health center
Offering prenatal screening in the age of genomic medicine: A practical guide
Consumer perspectives on access to direct‐to‐consumer genetic testing: Role of demographic factors and the testing experience
Developing a process for returning medically actionable genomic variants to latino patients in a federally qualified health center
Consumer perspectives on access to direct-to-consumer genetic testing: Role of demographic factors and the testing experience
Communicating with biobank participants: Preferences for receiving and providing updates to researchers
Managing expectational language: Translational genetic professionals consider the clinical potential of next-generation sequencing technologies
Genomic medicine and incidental findings: Balancing actionability and patient autonomy
Return of results in the genomic medicine projects of the eMERGE network
Next-generation disadvantages: Identifying potential barriers to integrating genomics into underserved medical settings
Expanded carrier screening in reproductive healthcare: Perspectives from genetics professionals
Genetics patients' perspectives on clinical genomic testing
The changing landscape of carrier screening: Expanding technology and options?
The role of patient advocacy organizations in shaping genomic science
Genetic testing integration panels (GTIPs): A novel approach for considering integration of direct-to-consumer and other new genetic tests into patient care
The ethical hazards and programmatic challenges of genomic newborn screening
How disease advocacy organizations participate in clinical research: A survey of genetic organizations
Navigating a research partnership between academia and industry to assess the impact of personalized genetic testing
Testing children for adult-onset genetic diseases
Addressing gaps in physician education using personal genomic testing
Informed consent to microsatellite instability and immunohistochemistry screening for Lynch syndrome
Downsizing genomic medicine: Approaching the ethical complexity of whole-genome sequencing by starting small
Patient perspectives on group benefits and harms in genetic research
Ethical and practical guidelines for reporting genetic research results to study participants: Updated guidelines from a National Heart, Lung, and Blood Institute working group
The financing of clinical genetics research by disease advocacy organizations: A review of funding disclosures in biomedical journals
Moral attitudes and beliefs among couples pursuing PGD for sex selection
Bioethical and clinical dilemmas of direct-to-consumer personal genomic testing: The problem of misattributed equivalence
Evaluating the utility of personal genomic information
Responsible patient advocacy: Perspectives from the Alpha-1 Foundation
Patients' views on identifiability of samples and informed consent for genetic research
Out of sequence: How consumer genomics could displace clinical genetics
The contractual genome: How direct-to-consumer genomic services may help patients take ownership of their DNA
Investments in cancer genomics: Who benefits and who decides
Ethical issues in medical-sequencing research: Implications of genotype-phenotype studies for individuals and populations
Ethical considerations in testing workers for the -Glu69 marker of genetic susceptibility to chronic beryllium disease
Beyond race: Towards a whole-genome perspective on human populations and genetic variation
Environmental, occupational, and genetic risk factors for alpha-1 antitrypsin deficiency
Community involvement in the ethical review of genetic research: Lessons from American Indian and Alaska Native populations
Applying genomic technologies in environmental health research: Challenges and opportunities
Pharmacogenetics, race, and ethnicity: Social identities and individualized medical care
The evolution of predictive genetic testing: Deciphering gene-environment interactions
The environmental genome project: Ethical, legal, and social implications
Involving study populations in the review of genetic research
Genetic research and culturally specific risks: One size does not fit all
The Environmental Genome Project and bioethics
The role of community review in evaluating the risks of human genetic variation research
Genetic determinism and the overprotection of human subjects
Ethical and practical guidelines for reporting genetic research results to study participants: Updated guidelines from an NHLBI working group
Offering aggregate results to participants in genomic research: Opportunities and challenges
Returning results in the genomic era: Initial experiences of the eMERGE Network
Clinical sequencing exploratory research consortium: Accelerating evidence-based practice of genomic medicine
Understanding the return of genomic sequencing results process: Content review of participant summary letters in the eMERGE research network
Returning integrated genomic risk and clinical recommendations: The eMERGE study
Ethical aspects of machine listening in healthcare
A focus group study on African American living donors' treatment preferences, sociocultural factors, and health beliefs about apolipoprotein L1 genetic testing
Familial hypercholesterolemia in the electronic medical records and genomics network: Prevalence, penetrance, cardiovascular risk, and outcomes after return of results

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