Sandra Soo-Jin Lee

Ph.D.
Chief of the Division of Ethics, Columbia University; Professor of Medical Humanities and Ethics, Columbia University; Co-Director, Center for ELSI Resources and Analysis (CERA), NIH/National Human Genome Research Institute; Co-Director, ELSI Congress, NIH/National Human Genome Research Institute

Institution(s):

Columbia University
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Methods

Qualitative Methods
Ethnography
Mixed Methods

Disciplines

Anthropology
Bioethics

Areas of Expertise

Genetics
Race and Ethnicity
Community Engagement
Health Disparities
precision medicine

Publications

The ethics of translational science: Imagining public benefit in gene-environment interaction research
Reimagining race and ancestry: Biomedicalizing difference in post-genomic subjects
Genetic research and health disparities
Reflections on the cost of "low-cost" whole genome sequencing: Framing the health policy debate
Beyond inclusion: Enacting team equity in precision medicine research
Family secrets: Experiences and outcomes of participating in direct-to-consumer genetic relative-finder services
Three decades of ethical, legal, and social implications research: Looking back to chart a path forward
Targeting representation: Interpreting calls for diversity in precision medicine research
Health equality, race and pharmacogenomics
Individualized interventions for rare genetic ccnditions and the research-treatment spectrum: Stakeholder perspectives
Wrestling with social and behavioral genomics: Risks, potential benefits, and ethical responsibility
Wrestling with public input on an ethical analysis of scientific research
Community engagement in precision medicine research: Organizational practices and their impacts for equity
An examination of the ethical and legal limits in implementing “traceback testing” for deceased patients
Innovating for a just and equitable future in genomic and precision medicine research
Unbounding ELSI: The ongoing work of centering equity and justice
Individualized interventions for rare genetic conditions and the research- treatment spectrum: Stakeholder perspectives
Rethinking benefit and responsibility in the context of diversity: Perspectives from the frontlines of precision medicine research
Pangenomics: Prioritize diversity in collaborations
Conflating race and ancestry: Tracing decision points about population descriptors over the precision medicine research life course
Interrogating the value of return of results for diverse populations: Perspectives from precision medicine researchers
Rethinking benefit and responsibility in the context of diversity: Perspectives from the front lines of precision medicine research
Improving care for marginalized populations at risk for hereditary cancer syndromes: Innovations that expanded reach in the CHARM Study
Understanding the gap: A cross-sectional survey of ELSI scholars’ dissemination practices and translation goals
Spotlighting structural constraints on decisions about participation in genomic and precision medicine
Reflections on the cost of “low-cost” whole genome sequencing: Framing the health policy debate

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