Maya Sabatello

LLB, Ph.D.
Associate Professor of Medical Sciences (in Medicine) and (in Medical Humanities and Ethics)

Institution(s):

Columbia University
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Methods

Community Engaged Research
Mixed Methods
Policy Analysis

Disciplines

ELSI
Policy
Research Ethics

Areas of Expertise

ELSI Genomics
Disability policy and law
Community Engagement
children and adolescent/pediatrics
Human Rights

Publications

Impact of genetic testing for cardiomyopathy on emotional well-being and family dynamics: A study of parents and adolescents
Increasing inclusivity in precision medicine research: Views of deaf and hard of hearing individuals
Project Inclusive Genetics: Exploring the impact of patient-centered counseling training on physical disability bias in the prenatal setting
Concerns about the use of polygenic embryo screening for psychiatric and cognitive traits
Addressing underrepresentation in genomics research through community engagement
Data sharing and community-engaged research
The impact of genetic education on referral of patients to genetic evaluation: Findings from a national survey of nephrologists
The value of intersectionality for genomic research on human behavior
Returning integrated genomic risk and clinical recommendations: The eMERGE study
How do experts in psychiatric genetics view the clinical utility of polygenic risk scores for schizophrenia?
Education and Electronic Medical Records and Genomics Network, challenges and lessons learned from a large-scale clinical trial using polygenic risk scores
Education and electronic medical records and genomics network, challenges, and lessons learned from a large-scale clinical trial using polygenic risk scores
Social and behavioral genomics: What does it mean for pediatrics?
Participant-guided development of bilingual genomic educational infographics for Electronic Medical Records and Genomics Phase IV study
Underrepresentation of blind and deaf participants in the All of Us Research Program
The need for an intersectionality framework in precision medicine research
The roots of (in)equity in precision medicine: Gaps in the discourse
Return of polygenic risk scores in research: Stakeholders' views on the eMERGE-IV Study
Invisible: People with disability and (in)equity in precision medicine research
Moving to equity in the All of Us Research Program
Advancing genomics to improve health equity
Managing differential performance of polygenic risk scores across groups: Real-world experience of the eMERGE Network
Negative results from DNA-based population screening for adult-onset diseases: The recipients' experience
Pediatric nephrologists' perspectives and clinical practices related to genetic testing and education
Nephrologists' views on a workflow for returning genetic results to research participants
Intersectionality in a sociogenomic world: How do race, disability, socioeconomic status, and polygenic prediction interact to impact perceptions of educational trajectories?
Beyond individual responsibility: Group harms in genomic (data-centric) research ethics require structural, justice-oriented solutions
Views of judges and potential jurors on responsibility for behavior in tort litigation in the genomic era
Consent at the ease of a click? Technosolutionist fixes cannot replace human relations and solidarity
Intersectionality in a sociogenomic world: How do race, disability, socioeconomic status, and polygenic prediction interact to affect perceptions of educational trajectories?
Team science in precision medicine research: The case for inclusion of adults with intellectual disability

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