Members of the ELSI Scholar Directory are scholars and trainees with an interest in research on the ethical, legal, and social implications of genetics and genomics. You may contact members to organize collaborative projects or working groups, share speaking opportunities, solicit expert commentary, obtain advice on policy or legislation, network, and arrange mentor/mentee relationships.
11 - 20 of 49 Scholars
Join Directory-
Bob Cook-Deegan, MD
Professor
Institution: Arizona State University
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Human Rights
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Curtis R Coughlin II, PhD, MS, MBE
Associate Professor of Pediatrics
Institution: University of Colorado
Contact: [email protected]
AREAS OF EXPERTISE
Show more- return of results
- Clinical Trials
- Clinical Ethics
- Genetic Testing
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Megan Doerr, MS, LGC
Director, Applied ELSI Research
Institution: Sage Bionetworks
Contact: [email protected]
AREAS OF EXPERTISE
Show more- ELSI Issues in Large-scale Population Cohort Studies
- Open science
- Informed Consent
- participatory research
- algorithmic harms
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Maya H. Doyle, MSW, PhD
Associate Professor of Social Work
Institution: Quinnpiac University
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Social Work
- Rare Diseases
- children and adolescent/pediatrics
- burden of illness
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Rafael D. Escandon, DrPH, PhD, MPH
Principal and Founder
Institution: DGBI Consulting, LLC
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Clinical Trials
- Clinical Research
- Clinical research ethics
- gene therapy
- Pediatric bioethics
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Stephanie M. Fullerton, DPhil
Professor, Bioethics and Humanities at the University of Washington
Institution: University of Washington
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Health Equity
- precision medicine
- Data Governance
- Biobanking
- Stakeholder Engagement
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Cara L. Hunt, MA
Research Associate and Project Manager, Pediatric Gene Therapy and Medical Ethics Working Group (PGTME)
Institution: NYU Grossman School of Medicine
Contact: [email protected]
AREAS OF EXPERTISE
Show more- gene therapy
- Clinical Trials
- Pediatric Research
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Tina A. Irvine, Ph.D
Visiting Scholar, Indiana University Center for Research on Race and Ethnicity in Society
Institution: Indiana University
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Eugenics
- Race
- genomic history
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Steven Joffe, M.D., M.P.H
Art and Ilene Penn Professor of Medical Ethics and Health Policy; Professor of Pediatrics
Institution: University of Pennsylvania Perelman School of Medicine
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Research Ethics
- Pediatric bioethics
- ELSI Genomics
- Science Policy
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Liza-Marie Johnson, MD, MPH, MSB
Physician Ethicist
Institution: St. Jude Children's Research Hospital
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Informed Consent
- Pediatric bioethics
- Consent for Genomic Testing
- Pediatric Research
- Best practices for clinical and research ethics consultation