Members of the ELSI Scholar Directory are scholars and trainees with an interest in research on the ethical, legal, and social implications of genetics and genomics. You may contact members to organize collaborative projects or working groups, share speaking opportunities, solicit expert commentary, obtain advice on policy or legislation, network, and arrange mentor/mentee relationships.
11 - 20 of 42 Scholars
Join Directory-
Megan Doerr, MS, LGC
Director, Applied ELSI Research
Institution: Sage Bionetworks
Contact: [email protected]
AREAS OF EXPERTISE
Show more- ELSI Issues in Large-scale Population Cohort Studies
- Open science
- Informed Consent
- participatory research
- algorithmic harms
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Rafael D. Escandon, DrPH, PhD, MPH
Principal and Founder
Institution: DGBI Consulting, LLC
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Clinical Trials
- Clinical Research
- Clinical research ethics
- gene therapy
- Pediatric bioethics
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Stephanie M. Fullerton, DPhil
Professor, Bioethics and Humanities at the University of Washington
Institution: University of Washington
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Health Equity
- precision medicine
- Data Governance
- Biobanking
- Stakeholder Engagement
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Cara L. Hunt, MA
Research Associate and Project Manager, Pediatric Gene Therapy and Medical Ethics Working Group (PGTME)
Institution: NYU Grossman School of Medicine
Contact: [email protected]
AREAS OF EXPERTISE
Show more- gene therapy
- Clinical Trials
- Pediatric Research
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Steven Joffe, M.D., M.P.H
Art and Ilene Penn Professor of Medical Ethics and Health Policy; Professor of Pediatrics
Institution: University of Pennsylvania Perelman School of Medicine
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Research Ethics
- Pediatric bioethics
- ELSI Genomics
- Science Policy
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Liza-Marie Johnson, MD, MPH, MSB
Physician Ethicist
Institution: St. Jude Children's Research Hospital
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Informed Consent
- Pediatric bioethics
- Consent for Genomic Testing
- Pediatric Research
- Best practices for clinical and research ethics consultation
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Sonya Jooma, MA
Deputy Policy Director
Institution: All of Us Research Program, NIH
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Biomedical policy
- responsible conduct of research
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Kimberly Kaphingst, ScD
Professor, Department of Communication, University of Utah and Director of Cancer Communication Research, Huntsman Cancer Institute
Institution: University of Utah
Contact: [email protected]
AREAS OF EXPERTISE
Show more- communication of results
- return of results
- Communication Research
- genetic literacy
- health literacy
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Miriam Kuppermann, PhD, MPH
Professor of Obstetrics, Gynecology and Epidemiology
Institution: University of California, San Francisco
Contact: [email protected]
AREAS OF EXPERTISE
Show more- obstetric outcomes
- Prenatal Diagnosis
- Prenatal care
- clinical decision-making
- health disparities
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Anna C F Lewis, DPhil
Research Associate
Institution: University of Oxford
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Polygenic risk scores
- genetic ancestry
- diversity
- return of results
- Newborn screening