Members of the ELSI Scholar Directory are scholars and trainees with an interest in research on the ethical, legal, and social implications of genetics and genomics. You may contact members to organize collaborative projects or working groups, share speaking opportunities, solicit expert commentary, obtain advice on policy or legislation, network, and arrange mentor/mentee relationships.
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Don Bailey, Ph.D.
Distinguished Fellow
Institution: RTI International
Contact: [email protected]
AREAS OF EXPERTISE
- Newborn screening
- Disability studies
- Families

Betty Cohn, MBE
Research Assistant
Institution: Johns Hopkins Berman Institute of Bioethics
Contact: [email protected]
AREAS OF EXPERTISE
- direct-to-consumer genetic testing
- Public Health
- Bioethics

Rafael D. Escandon, DrPH, PhD, MPH
Principal and Founder
Institution: DGBI Consulting, LLC
Contact: [email protected]
AREAS OF EXPERTISE
- Clinical Trials
- Clinical Research
- Clinical research ethics
- gene therapy
- Pediatric bioethics

Ruth A. Etzel, M.D., Ph.D.
Professorial Lecturer in the Department of Environmental and Occupational Health
Institution: George Washington University
Contact: [email protected]
AREAS OF EXPERTISE
- Toxins
- Suppressed Research
- Ethical issues for child health research
- Alaska Native research

Carole A. Federico, Ph.D.
Postdoctoral Fellow, Center for Biomedical Ethics
Institution: Stanford University
Contact: [email protected]
AREAS OF EXPERTISE
- Translational Research
- Clinical Trials
- Animal Research
- Research Ethics
- Pain

Sara Feldman, MPH, BS
Doctoral Student
Institution: University of Michigan
Contact: [email protected]
AREAS OF EXPERTISE
- Alzheimer's disease risk
- Alzheimer's Disease
- Genetic Testing
- Apolipoprotein E (APOE)
- Amyloid beta-Protein

Nanibaa' Garrison, Ph.D.
Associate Professor at the University of California, Los Angeles
Institution: University of California, Los Angeles
Contact: [email protected]
AREAS OF EXPERTISE
- Indigenous Communities
- Community Engagement
- data sovereignty
- precision health

Nora B Henrikson, PhD, MPH
Assistant Investigator
Institution: Kaiser Permanente Washington Health Research Institute
Contact: [email protected]
AREAS OF EXPERTISE
- Consent
- Ethical Legal and Social Implications (ELSI)
- Behavioral and Social Science
- Epidemiology
- Cascade screening

Cara L. Hunt, MA
Research Associate and Project Manager, Pediatric Gene Therapy and Medical Ethics Working Group (PGTME)
Institution: NYU Grossman School of Medicine
Contact: [email protected]
AREAS OF EXPERTISE
- gene therapy
- Clinical Trials
- Pediatric Research

Teri E. Klein, Ph.D.
Professor (Research) of Biomedical Data Science and Medicine (BMIR)
Institution: Stanford University
Contact: [email protected]
AREAS OF EXPERTISE
- Pharmcogenomics
- Pharmacogenetics
- Biomedical informatics
- Genomic medicine
- Computational Biology