Members of the ELSI Scholar Directory are scholars and trainees with an interest in research on the ethical, legal, and social implications of genetics and genomics. You may contact members to organize collaborative projects or working groups, share speaking opportunities, solicit expert commentary, obtain advice on policy or legislation, network, and arrange mentor/mentee relationships.
1 - 10 of 35 Scholars
Join Directory-
Bethania de Araujo Almeida, PhD, MSc, BSc
Analyst/Researcher
Institution: The Centre for Data and Knowledge Integration (CIDACS/FIOCRUZ)
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Open science
- population health
- Data Governance
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Don Bailey, Ph.D.
Distinguished Fellow
Institution: RTI International
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Newborn screening
- Disability studies
- Families
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Chinmayi Balusu, BA
Master of Public Health Student
Institution: Columbia University
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Neuroethics
- Epidemiology
- Stroke
- Traumatic Brain Injury
- Education and Outreach
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Pascal Borry, PhD
Professor of Bioethics
Institution: KU Leuven
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Direct to Consumer Genetic Testing
- Ethical and organizational issues in biobanking
- expanded carrier screening
- Non-invasive prenatal screening - NIPT
- Genetic Testing
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Rikki Caffrey, DBe, MA, MS
Director, Ethics
Institution: Advocate Health
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Genetic Counseling
- Biomedical Ethics
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John C Carey, MD, MPH
Professor Emeritus, Pediatrics
Institution: University of Utah Health
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Medical Genetics
- Birth Defects
- chromosome disorders
- deafness
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Betty Cohn, MBE
Research Assistant
Institution: Johns Hopkins Berman Institute of Bioethics
Contact: [email protected]
AREAS OF EXPERTISE
Show more- direct-to-consumer genetic testing
- Public Health
- Bioethics
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Wendy Diller, MS, MBA
Senior Writer
Institution: Innovation in MedTech
Contact: [email protected]
AREAS OF EXPERTISE
Show more- precision medicine
- Medical Devices
- clinical diagnostics
- Cancer and clinical implementation of genomics
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Deborah Ekusai-Sebatta, MA, BS, PMP Diploma
Social Scientist
Institution: Makerere University College of Health Sciences, School of Biomedical Sciences
Contact: [email protected]
AREAS OF EXPERTISE
Show more- genomic data sharing
- Behavioral and Social Science
- Regulation
- Qualitative research
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Rafael D. Escandon, DrPH, PhD, MPH
Principal and Founder
Institution: DGBI Consulting, LLC
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Clinical Trials
- Clinical Research
- Clinical research ethics
- gene therapy
- Pediatric bioethics