Partnership for Genetic Services

This program will develop a model project, aimed at increasing the likelihood that persons affected by genetic conditions receive quality family-centered and culturally sensitive medical care. This will be accomplished by: 1) implementing a model for the program in conjunction with three regions of the Council of Regional Networks for Genetic Services (CORN) and evaluating the effectiveness of the model's design: 2) identifying and defining key components of a consumer perspective on quality genetic services: 3) integrating 30 genetics consumer educators in classes at approximately 15 medical schools, internship and residency programs, representing approximately 5,000 students: 4) bringing together 20 genetics consumer educators and clinical genetics providers with PCPs and managed care administrators at four, managed care pilot organizations - representing approximately 14,000 primary care providers to enhance genetic services to the approximately 768,000 plan members who receive their care within these settings: and 5) developing, employing and evaluating multimedia educational materials for genetic consumer educators to use in support of case-based learning interventions with medical students and primary care providers.