In The Spotlight
News: ELSI FRIDAY FORUM
ELSI Friday Forum Seminar Series
ABOUT
ELSI Friday Forum is a monthly one-hour seminar series featuring topics on the ethical, legal, and social implications (ELSI) of genetics and genomics research. Join us from 12:00-1:00 pm ET / 9:00-10:00 am PT on the second Friday of each month for talks and panels on a…
News: ELSIhub Collections
ELSIhub Collections | Race, Genetics, and Genetics Education
Collection Editors
Brian M. Donovan, PhD, Research Scientist, BSCS Science Learning
Daphne O. Martschenko, PhD, Postdoctoral Research Fellow,…
News: ELSIhub Collections
ELSIhub Collections | Ethical, Legal, and Social Implications (ELSI) at the Intersection of Genomics and Infectious Disease
Collection Editors
Debra JH Mathews, PhD, MA, Center for Bridging Infectious Disease, Genomics, and Society (BRIDGES), Assistant Director for…
News
ELSIconversations
ABOUT
ELSIconversations debuts with a series of six themed one-hour networking discussions on ELSI research. Join us from 12:00-1:00 pm ET / 9:00-10…
Upcoming Events
Mar
3
Conference
Conducting Research in the COVID-19 Pandemic: Ethics in an Emergency
Mar
5
ELSIconversations
ELSIconversations: Community Perspectives on Recruitment to Genetics…
Mar
8
Webinar
Responsible Research on Ancient DNA
Mar
12
Webinar
Migrant DNA: Context, Ethics and Legal Issues
In the Media
The Wall Street Journal
What Gene Editing Can Do for Humankind
The New York Times
America’s Brutal Racial History Is Written All Over Our Genes
ELSIhub Featured News
New Publications
Journal Article
“It seems like COVID-19 now is the only disease present on Earth”: Living with a rare or undiagnosed disease during the COVID-19 pandemic
Halley and colleagues call for urgent action and attention to the serious challenges posed by the COVID-19 pandemic for people with rare or undiagnosed diseases.
Journal Article
Human brain surrogates research: The onrushing ethical dilemma
Greely outlines ethical and legal issues related to the creation of proxies for living human brains that could merit the same consideration as living humans.
Journal Article
Assessment of the All of Us research program's informed consent process
Doerr and colleagues find fewer correct responses on questions about privacy and terms unfamiliar to very low health literacy participants in two analyses of the All of Us eConsent process.
Latest
A Prospectus on Ethical Issues in the Context of Collaborations Between Academic and Non-academic Institutions on Genetics Research
Emily Bullis, MA and Anjali Shastri, PhD - 23andMe
ELSIconversations - February 26, 2021