In The Spotlight
News: ELSI FRIDAY FORUM
NSF Fall 2021 Virtual Grants Conference
Genomic Data Sharing: Putting Principles and Policy into Practice
2021 ASBH Conference: Bioethics and Humanities at the Crossroads
Prenatal Somatic Cell Gene Therapies: Charting a Path Forward for…
ELSIhub Featured News
Barriers to family history knowledge and family communication among LGBTQ+ individuals in the context of hereditary cancer risk assessment
Participants who disclosed an LGBTQ+ identity in this study by Rolf and colleagues were more likely to report family dynamics with the potential to limit their family history knowledge and impair their access to or full benefit from cancer risk assessment.
Young people's moral attitudes and motivations towards direct-to-consumer genetic testing for inherited risk of Alzheimer disease
Most biological grandchildren of people with late-onset Alzheimer's disease (LOAD), in this study by Pavarini and colleagues, supported the right of individuals to access online direct-to-consumer genetic testing for LOAD, but did not wish to get tested.
Enrolling children in clinical trials for genetic neurodevelopmental conditions: Ethics, parental decisions, and children's identities
Turbitt and colleagues call for further research with families of children with neurodevelopmental conditions to optimize the recruitment and consent processes for trials of novel treatments that may interact with the child’s personality.