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Grant Abstract
Center for Research on Ethical, Legal & Social Implications of Psychiatric, Neurologic & Behavioral Genetics
This application proposes the continuation of a Center for Research on the Ethical, Legal & Social Implications of Psychiatric, Neurologic & Behavioral (PNB) Genetics at Columbia University…- Academic Medical Centers
- Activities of Daily Living
- Address
- Affect
- autism spectrum disorder
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Grant Abstract
NSIGHT: Sequencing of Newborn Blood Spot DNA to Improve and Expand Newborn Screening
The purpose of the Newborn Sequencing In Genomic medicine and public HealTh (NSIGHT) program is to explore, in a limited but deliberate manner, the implications, challenges and opportunities…- base
- Biochemical
- Biological Assay
- Blood
- Child
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Grant Abstract
Exploring Perspectives of Genomics & Sickle Cell Public Health Interventions
H3Africa provides an unprecedented opportunity to study genetic and genomic technologies into research, diagnosis, intervention, and treatment for sickle cell disease (SCD) in Africa. As such,…- Africa
- African
- Age
- Attention
- Attitude
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Grant Abstract
Public Preferences for Addressing Donors Moral Concerns about Biobank Research
With the growing importance of biobank research, concerns have been raised about how to protect the interests of donors. The current ethics framework mainly focuses on protecting against risks to…- Attention
- base
- Belief
- biobank
- Biocompatible Materials
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Grant Abstract
Clinical and genetic studies of hereditary neurological disorders in Mali
Despite the vast diversity of its populations, genetic studies in Africa have been limited. African populations, Malians in particular, have a high rate of intra-ethnic and consanguineous marriage,…- Affect
- Africa
- Africa South of the Sahara
- African
- Award
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Grant Abstract
Building Local Capacities in Ethics Training and IRB Review in Guatemala
This application is in response to PAR-13-027, International Research Ethics Education and Curriculum Development Award. The proposed project builds on an existing relationship in biomedical research…- Administrator
- Area
- Award
- base
- Biomedical Research
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Grant Abstract
International Health Research Ethics Training Program
Sub Saharan Africa with only 11% of the world's population has more than 24% of the global disease burden, over 70% of the world's HIV infected persons, and only 3% of the global work force…- Administrator
- Adult
- Africa
- Africa South of the Sahara
- African
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Grant Abstract
Using virtual counselors to overcome genetic literacy barriers: Project VICKY
Rapid advances in human genetics have prompted concerns about the public's readiness to process and utilize the knowledge gained to make informed decisions about their health. To facilitate…- Behavioral
- Boston
- Caring
- Centers for Disease Control and Prevention (U.S.)
- Chronic Disease
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Grant Abstract
Families At Risk: Long-term Impact of Huntington's Presymptomatic Genetic Testing
Huntington's disease (HD) has for decades served as a model for how we think about genetic testing, and its benefits and risks for tested individuals and their families. In 1983, the gene for HD…- Adult
- Benefits and Risks
- career
- Child
- Chromosome 4
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Grant Abstract
Harmonizing Privacy Laws to Enable International Biobank Research
In recent years, researchers from around the world have begun developing repositories of tissues and socio-demographic data for genetics and other biomedical research. These biobanks, often linked…- biobank
- Biomedical Research
- Clinical
- Code
- Collaborations