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Neurobehavioral Genetic Testing in Children: How Much Should We Know?
Recent advances in genetics have yielded important insights into the etiology of autism spectrum disorder (ASD) and other neurodevelopmental disorders (NDDs). Professional societies such as the…- Genetic Testing
- Testing children
- autism spectrum disorder
- autism
- pediatric
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Who Are We Now? Genetics, Genomics, and the Question of the Human
“We used to think our fate was in the stars,” quipped James Watson in a Time magazine piece announcing the Human Genome Project (HGP). “Now we know, in large measure, our fate is in our genes.”…- Epigenetics
- genetic identity
- bias
- Justice
- genetic information
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How Literature and Film Shape and Reflect Public Attitudes toward Genetics
Powerful works of art enrich our understanding of the issues that matter most in our lives—not least in controversial areas of the biosciences. By exploring the dense cultural networks that shape…- Narratives
- Film
- Literature
- public attitudes
- race and genetics
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Social Norms in Selective Reproduction: Implications for the Wide Offer of Genetic Screening Technologies
The ability to offer genetic information to inform reproductive decisions, for example through reproductive genetic carrier screening, expanded prenatal testing, or preimplantation embryo screening,…- genetic screening
- Reproduction
- genetic technologies
- disability
- prenatal testing
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Expanded Carrier Screening (ECS): Clinical and Ethical Considerations for Genetic Counseling
Targeted carrier screening began over 50 years ago with a focus on populations at increased risk for specific genetic conditions based on patient-reported racial, ethnic, or ancestral background. As…- expanded carrier screening
- genetic counseling
- genetic technologies
- carrier screening
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Advancing Ethical Engagement and Benefit Sharing Within International Collaborative Genomic Research Partnerships in Africa
Due to advances in genomic sequencing and reduced costs, the development of statistical techniques and technologies for analysis of large datasets, and a scientific interest in population-specific…- ethical engagement
- benefit sharing
- Africa
- Collaborations
- genomic research
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Technologies to Operationalize Indigenous Data Sovereignty
Throughout history, data about Indigenous communities, cultures, and territories have been collected and collated through research and surveillance as part of processes of colonisation and…- Indigenous data
- Indigenous Communities
- Big Data
- decolonization
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Ethical, Legal, and Social Implications (ELSI) of DNA-based Technologies for Disaster Victim Identification (DVI)
As we mark the 20th anniversary of the attacks on the World Trade Center and Washington, D.C. that occurred on September 11, 2001, we reflect on the pain and loss of the events that shook the entire…- DNA-based technology
- Disaster victim identification (DVI)
- Identity sciences
- DNA identification
- natural disaster
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Current Legal Challenges to Abortion: Implications for Prenatal Genetics
The ability to examine the health of the fetus has expanded dramatically in the last half century. Most of the time, the news is reassuring. However, prenatal screening and diagnosis detect genetic…- abortion
- prenatal genetics
- Down Syndrome
- Prenatal Diagnosis
- Prenatal screening
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Game of Bones: Power, Ethics, and Emerging Technology in Paleogenomics Research
The field of paleogenomics is exploding. More ancient genomes were sequenced in 2019 than in all of history. According to The Economist, in 2018, oil was the most traded global commodity. However, in…- paleogenomics
- ancient DNA
- emerging technology
- Indigenous Peoples
- archaeology